We received some really sad news yesterday. Sam the Red-Tail Hawk, that we were going to see next week, died suddenly from an infection she contracted a few days ago. Matt and his family are devistated as you can imagine this Sweet pet, was a big part of their life. They grew to love her very much for all she contributed to their family, and caring for her.
We will still be having our Meeting on the 25th but we will be changing what we are doing in light of this news.
Our deepest sympathy goes to you and your family Matt. Thank you so much for being so willing to share Sam with us.
In leiu of the sad news- we are changing plans for the Group Meeting on Monday, August 25th.
We will still be meeting at
The Church of Jesus Christ of Latter-day Saints
8250 Cornell Rd
Montgomery
7:00 p.m.
Parents will be meeting in the Room across from the Gym-
Topic
504 Plans- IEPS and School issues
Question and answer session helpful hints
Kids- Meet in the Gym
Adult supervised
Game Night- depending on number of kids-
Group games or Fun Card and board games
Refreshments in Gym- Rootbeer Floats
Thank you everyone for your understanding and flexibility.
Cari
Showing posts with label Tourette Syndrome Family Support Group. Show all posts
Showing posts with label Tourette Syndrome Family Support Group. Show all posts
Monday, April 18, 2011
Friday, September 17, 2010
A Kid Talking to Kids-It's about more than Tics
Here is the latest information about the Youth Ambassador Program. Tanner and I wrote to the editor of the Loveland Magazine and asked if he could publish information about our More than Tics Family Support Group, and the Youth Ambassador Program. We were excited to get a little link time on the Front Page of the Loveland Magazine. We appreciate the notice being taken and hope for more opportunties to share the information about our cause. We have some more presentations coming up in October at Milford High School. We are heading back to Mason Intermediate, because we had such a fabulous time with the kids, to speak to another grade about TS. Thanks so much for inviting us back.
A Kid Talking to Kids
Dear Loveland Magazine Readers,
We are trying to get the word out to families in the Cincinnati Area about the Tourette Syndrome Youth Ambassador Presentation. We have contacted local schools however, we would like to make Families aware of this FREE benefit they can have with a Kid Talking to Kids, and educating teachers about what it is like to have Tourette Syndrome. This is a brand new program that has never been offered here before and we want to make it available to as many Families as possible. We are affiliated with the National Tourette Syndrome Association www.tsa-usa.org - It is the Tourette Syndrome Youth Ambassador Program.
This last spring, Tanner Hutchison, (age 15 ½ and Ohio’s TS Youth Ambassador) complete training in Virginia, with 35 other youth from around the nation to be able to a Youth Ambassador for the state of Ohio. Tanner is a student at Milford High School. He is going in to schools, and community events, to giving a free 30-45 minute presentation to educating groups about what it is like to have Tourette syndrome. (He was diagnosised at the age of 9) We are also looking to recruit and train more youth ambassadors here in the Cincinnati and other regions in the state of Ohio.
Tanner enjoys participating in Boy Scouts, cross country running, and singing in his school choir. He was a participant in the District IV Honors
Choir, and is pursuing Eagle Scout designation.
Tanner has been recently finished speaking to 100 6th graders at Mason Intermediate School a couple of weeks ago. Tanner spoke on behalf of a buddy who wanted to talk to his classmates about his TS and why he does some of the crazy things they ask about. We ended up finding another Boy who had TS as well, and a wonderful group of kids who were very attentive, understanding and asked fantastic questions.
We have attached a brochure with information about the program or you can go to www.tsa-usa.org website and click on the link for Youth Ambassador program. We gave a presentation to the Tic and Movement Disorder Clinic staff in the Neurology Dept. of Children’s Hospital in June to so they could see first hand the work Tanner is trying to do.
Here are news articles that have reported about how Tanner is trying to advocate for others:
TSA Nationals Newsletter article featuring the Youth Ambassadors
Other local articles written about Tanner Hutchison and his advocating work:
http://issuu.com/cincinnati/docs/milford-miami-advertiser-070710
http://local.cincinnati.com/share/news/story.aspx?sid=166534&cid=100092
In addition to this great presentation, the Hutchison Family is privately sponsoring a Family Support Group for families with members who have Tourette Syndrome. We meet monthly at The Church of Jesus Christ of Latter-day Saints at 8250 Cornell Rd in Montgomery right off I-275
This is support group is for the entire family children and siblings included. We provide activities for the children to learn and socialize as well as classes for the adults to help them advocate for their families. Here is a link for more information about our upcoming events: www.morethantics.blogspot.com.
Our next support Group Meeting features a program about Nutrition and Exercise, a Family Affair by Nutritionist and TS Mom, Laurie Dunham.
Monday September 20th, 2010 at 6:30-8:30 PM
The Church of Jesus Christ of Latter-Day Saints
8250 Cornell Rd., Cincinnati Ohio 45249
All family members will be welcome, we will be playing Broom Hockey in the Gym with the kids, and the kids need to bring a broom. There will be 2 Adult Referee parents supervising.
Warmest Regards,
Cari Hutchison
morethantics@gmail.com
Tourette Syndrome is an inherited neurobiological disorder that affects children in all racial and ethnic groups. The symptoms of this disorder are rapid, repeated, and involuntary movements and sounds called tics. It is estimated that 200,000 Americans suffer from symptoms of Tourette Syndrome and endure the stigma, isolation and psychological impact of this disorder. There is no cure for Tourette Syndrome although some individuals benefit from medication and other clinical treatment. One of the most important things that you can do for children with TS is to educate their peers and the people who they encounter each day about their disorder.
Monday, September 13, 2010
Permalink
http://www.lovelandmagazine.com/2010/09/tourette-syndrome-youth-ambassador-presentation.html
A Kid Talking to Kids
Dear Loveland Magazine Readers,
We are trying to get the word out to families in the Cincinnati Area about the Tourette Syndrome Youth Ambassador Presentation. We have contacted local schools however, we would like to make Families aware of this FREE benefit they can have with a Kid Talking to Kids, and educating teachers about what it is like to have Tourette Syndrome. This is a brand new program that has never been offered here before and we want to make it available to as many Families as possible. We are affiliated with the National Tourette Syndrome Association www.tsa-usa.org - It is the Tourette Syndrome Youth Ambassador Program.
This last spring, Tanner Hutchison, (age 15 ½ and Ohio’s TS Youth Ambassador) complete training in Virginia, with 35 other youth from around the nation to be able to a Youth Ambassador for the state of Ohio. Tanner is a student at Milford High School. He is going in to schools, and community events, to giving a free 30-45 minute presentation to educating groups about what it is like to have Tourette syndrome. (He was diagnosised at the age of 9) We are also looking to recruit and train more youth ambassadors here in the Cincinnati and other regions in the state of Ohio.
Tanner enjoys participating in Boy Scouts, cross country running, and singing in his school choir. He was a participant in the District IV Honors
Choir, and is pursuing Eagle Scout designation.
Tanner has been recently finished speaking to 100 6th graders at Mason Intermediate School a couple of weeks ago. Tanner spoke on behalf of a buddy who wanted to talk to his classmates about his TS and why he does some of the crazy things they ask about. We ended up finding another Boy who had TS as well, and a wonderful group of kids who were very attentive, understanding and asked fantastic questions.
We have attached a brochure with information about the program or you can go to www.tsa-usa.org website and click on the link for Youth Ambassador program. We gave a presentation to the Tic and Movement Disorder Clinic staff in the Neurology Dept. of Children’s Hospital in June to so they could see first hand the work Tanner is trying to do.
Here are news articles that have reported about how Tanner is trying to advocate for others:
TSA Nationals Newsletter article featuring the Youth Ambassadors
Other local articles written about Tanner Hutchison and his advocating work:
http://issuu.com/cincinnati/docs/milford-miami-advertiser-070710
http://local.cincinnati.com/share/news/story.aspx?sid=166534&cid=100092
In addition to this great presentation, the Hutchison Family is privately sponsoring a Family Support Group for families with members who have Tourette Syndrome. We meet monthly at The Church of Jesus Christ of Latter-day Saints at 8250 Cornell Rd in Montgomery right off I-275
This is support group is for the entire family children and siblings included. We provide activities for the children to learn and socialize as well as classes for the adults to help them advocate for their families. Here is a link for more information about our upcoming events: www.morethantics.blogspot.com.
Our next support Group Meeting features a program about Nutrition and Exercise, a Family Affair by Nutritionist and TS Mom, Laurie Dunham.
Monday September 20th, 2010 at 6:30-8:30 PM
The Church of Jesus Christ of Latter-Day Saints
8250 Cornell Rd., Cincinnati Ohio 45249
All family members will be welcome, we will be playing Broom Hockey in the Gym with the kids, and the kids need to bring a broom. There will be 2 Adult Referee parents supervising.
Warmest Regards,
Cari Hutchison
morethantics@gmail.com
Tourette Syndrome is an inherited neurobiological disorder that affects children in all racial and ethnic groups. The symptoms of this disorder are rapid, repeated, and involuntary movements and sounds called tics. It is estimated that 200,000 Americans suffer from symptoms of Tourette Syndrome and endure the stigma, isolation and psychological impact of this disorder. There is no cure for Tourette Syndrome although some individuals benefit from medication and other clinical treatment. One of the most important things that you can do for children with TS is to educate their peers and the people who they encounter each day about their disorder.
Monday, September 13, 2010
Permalink
http://www.lovelandmagazine.com/2010/09/tourette-syndrome-youth-ambassador-presentation.html
Tuesday, August 10, 2010
August Updates and Support Group Meeting
Hello Everyone,
I hope you are having a great summer so far. We are, but I can tell that the boredom is setting in, and hopefully I can make it another month with our crew, since we have an extra long summer this year.
Our next Family support group meeting is
Family Workshop-
How to talk deal with Bullies & how to talk about your TS with others
Monday August, 23rd, 2010 at 6:30-8:00
Church of Jesus Christ of Latter-day Saints,
8250 Cornell Rd, Montgomery
The Family Workshop will be a Center/Group activity role playing how to talk or advocate for yourself, and talk about your Tourette Syndrome or your tics. Tanner will take the first 30 minutes to present the Youth Ambassador Presentation for those of you who haven't seen it, and also for the kids to see what it is like to see if they would like Tanner to come and speak to their class at the beginning of the year.
Then we will have a questions answer for the kids to Tanner about how he handles situations at school, and with his sports teams and others. Hopefully this will help the kids get some ideas of how they can approach situations.
If there is time left. We will break off into groups, and talk in small groups about different scenarios of how to handle situations. I will have slips, for the kids to draw different conflicts and how to handle them.
If you have any specific needs or issues you would like to have addressed, please email them to me and I will put them into the mix, as anonymous situations.
I hope this will give the kids a chance to think through what is coming up with the beginning of school and how to help themselves be successful.
We will have refreshments at the end- Icecream Sundaes- if you wouldn't mind RSVPing to me, if your family is planning on attending. I will have each family bring a topping for the Sundaes, and we will provide the icecream- When you RSVP I will assign you the topping to bring so we don't have to much of a good thing.
You can RSVP by replying to this email or you can text me on my cell phone- 513-569-2982
NEWS- & Upcoming ideas
TS Awareness RUN-Walk-Ride
Several families have expressed interest in doing a fundraiser by doing a run for TS or a bike for TS or something similar to that. This is a fantastic idea, and after discussing the options with The National Tourette Syndrome Association, I have found that they will actually hold an account for us to raise money for the Youth Ambassador Program even though we are not directly affiliated with the TS-Ohio chapter. So, we can take the money we raise with our runs or walks or event we decide to hold, or participate in, and send the Money to TSA National and they will put that towards helping us get the Youth Ambassador Program off and running.
If there is anyone interested in heading this up, to plan and organize this event, I would LOVE, LOVE, LOVE to talk to you. Please contact me and I can get you the information of how we can get started. I would very much appreciate the help and assistance in getting this off the ground and running. The more of us that are involved, the better, and we can have A LOT! of fun with this.
Grant Money for our Support Group-
I have recently found out about a few companies that are sponsoring kids for charitable events that they working to do. I am applying for a Grant at one of these companies, in hopes that we can get some money for our More than Tics Family Support Group. We are hoping by even qualifiying for the $300 grant that it will help us, fund some fun activities for the kids in the future. I am hoping that This money will help to supplement an Activity for October for a trip to the pumpkin patch or corn maze or some great event like that for Fall. This way we are able to help everyone come and enjoy.
If you know of any other opportunities, or Grants or money that may be available to help fund and support our Family Support Group, or the TS Youth Ambassador Program we would LOVE to hear about it. It is always worth a shot.
www.morethantics.blogspot.com We are excited to work cooperatively with TSA National, and appreciate their support and help in giving us ideas and keeping us informed of opportunities that will help us all. That is what it is all about. Helping each other be successful!!!
Happy Days!
I hope you are having a great summer so far. We are, but I can tell that the boredom is setting in, and hopefully I can make it another month with our crew, since we have an extra long summer this year.
Our next Family support group meeting is
Family Workshop-
How to talk deal with Bullies & how to talk about your TS with others
Monday August, 23rd, 2010 at 6:30-8:00
Church of Jesus Christ of Latter-day Saints,
8250 Cornell Rd, Montgomery
The Family Workshop will be a Center/Group activity role playing how to talk or advocate for yourself, and talk about your Tourette Syndrome or your tics. Tanner will take the first 30 minutes to present the Youth Ambassador Presentation for those of you who haven't seen it, and also for the kids to see what it is like to see if they would like Tanner to come and speak to their class at the beginning of the year.
Then we will have a questions answer for the kids to Tanner about how he handles situations at school, and with his sports teams and others. Hopefully this will help the kids get some ideas of how they can approach situations.
If there is time left. We will break off into groups, and talk in small groups about different scenarios of how to handle situations. I will have slips, for the kids to draw different conflicts and how to handle them.
If you have any specific needs or issues you would like to have addressed, please email them to me and I will put them into the mix, as anonymous situations.
I hope this will give the kids a chance to think through what is coming up with the beginning of school and how to help themselves be successful.
We will have refreshments at the end- Icecream Sundaes- if you wouldn't mind RSVPing to me, if your family is planning on attending. I will have each family bring a topping for the Sundaes, and we will provide the icecream- When you RSVP I will assign you the topping to bring so we don't have to much of a good thing.
You can RSVP by replying to this email or you can text me on my cell phone- 513-569-2982
NEWS- & Upcoming ideas
TS Awareness RUN-Walk-Ride
Several families have expressed interest in doing a fundraiser by doing a run for TS or a bike for TS or something similar to that. This is a fantastic idea, and after discussing the options with The National Tourette Syndrome Association, I have found that they will actually hold an account for us to raise money for the Youth Ambassador Program even though we are not directly affiliated with the TS-Ohio chapter. So, we can take the money we raise with our runs or walks or event we decide to hold, or participate in, and send the Money to TSA National and they will put that towards helping us get the Youth Ambassador Program off and running.
If there is anyone interested in heading this up, to plan and organize this event, I would LOVE, LOVE, LOVE to talk to you. Please contact me and I can get you the information of how we can get started. I would very much appreciate the help and assistance in getting this off the ground and running. The more of us that are involved, the better, and we can have A LOT! of fun with this.
Grant Money for our Support Group-
I have recently found out about a few companies that are sponsoring kids for charitable events that they working to do. I am applying for a Grant at one of these companies, in hopes that we can get some money for our More than Tics Family Support Group. We are hoping by even qualifiying for the $300 grant that it will help us, fund some fun activities for the kids in the future. I am hoping that This money will help to supplement an Activity for October for a trip to the pumpkin patch or corn maze or some great event like that for Fall. This way we are able to help everyone come and enjoy.
If you know of any other opportunities, or Grants or money that may be available to help fund and support our Family Support Group, or the TS Youth Ambassador Program we would LOVE to hear about it. It is always worth a shot.
www.morethantics.blogspot.com We are excited to work cooperatively with TSA National, and appreciate their support and help in giving us ideas and keeping us informed of opportunities that will help us all. That is what it is all about. Helping each other be successful!!!
Happy Days!
Wednesday, June 2, 2010
June Support Group Meeting & Lindner Center Summer Smart program
We had a wonderful turnout for our Bonfire and BBQ- It was a lot of fun to hang out and get to know you all better. Thank you so much to all of you who traveled so far to come and participate. We look forward to finding more activities to do in other areas around Cincinnati. If you have any suggestions, please post a comment and let us know. It is our hope to get other groups started and running all around the Tri-state area.
Also be sure to sign up on our email list at morethantics@gmail.com (This is a private list, and I definately do not use the information except for Tourette Sydrome related business.)
Here is the information for June's Family Support Group Meeting-
Monday June 21st- 6:30-8:30
Jennifer Wells LSCW,
Lindner Center of Hope
Speaking on OCD Anxiety and it's ties to Tourette's Syndrome
The Church of Jesus Christ of Latterday Saints
8250 Cornell Rd
Cincinnati Ohio 45249
We are going to be posting more information on the Tourette Syndrome Youth Ambassador Program. We are scheduling events to speak at and Tanner will be heading to Cincinnati Children's Hospital Next week to speak to the Neurology nurses. We are always looking for more Youth ambassadors, so if you are interested then please let us know, and we would love to speak with you.
Also be sure to sign up on our email list at morethantics@gmail.com (This is a private list, and I definately do not use the information except for Tourette Sydrome related business.)
Here is the information for June's Family Support Group Meeting-
Monday June 21st- 6:30-8:30
Jennifer Wells LSCW,
Lindner Center of Hope
Speaking on OCD Anxiety and it's ties to Tourette's Syndrome
The Church of Jesus Christ of Latterday Saints
8250 Cornell Rd
Cincinnati Ohio 45249
We are going to be posting more information on the Tourette Syndrome Youth Ambassador Program. We are scheduling events to speak at and Tanner will be heading to Cincinnati Children's Hospital Next week to speak to the Neurology nurses. We are always looking for more Youth ambassadors, so if you are interested then please let us know, and we would love to speak with you.
Thursday, May 27, 2010
Tri-State Family Support Group
One thing my husband and I have heard over and over, is the need for families who deal with Tourette Syndrome to have a support group. We have spoken with so many of you, and Therapists and doctors as we have sought treatment for our own children, we decided to start our own support group. We tried to start with TSA of Ohio, but I think our forward thinking and ideas were a little far fetched for what they were concentrating on right now. So we are breaking out on our own, since we have a place to meet and many families that have been contacting us, it is good to just keep the momentum moving forward and including all of you in that.
One of the main focus' that we want to have, is on the Family. We feel it is VERY important for other TS kids to have other TS kids to hang out with and know they understand what each other is dealing with. It is also important to have that support as parents, from other parents who have been down the road you may be on, or have experienced something you are starting. HERE IT IS, THE FAMILY SUPPORT GROUP!!! We want the kids to attend, and we will be providing activities for them to enjoy with each other while you are learning from speakers, or doing other activities. There will be adult supervision at all times. You are welcome to help out any time, and check in on your children at any time. Siblings need to be apart of it too so they are welcome to join us all as well.
Our first meeting is this weekend,
Family BBQ-Bonfire-Barrel Burning of old school papers
May 27, 2010 6-10
Hutchison Home
The purpose of this event is just socializing. We have a tradition in our family of burning all our old school papers in our barrel as our last hurrah! Bring you papers to burn, with parent approval of course. (It cleans out the collections from savers as well)
We will be providing Hotdogs, Hamburgers, and Smores. Bring a potluck side dish to share.
Monday June 21st- 6:30-8:30
Jennifer Wells LSCW,
Lindner Center of Hope
Speaking on OCD Anxiety and it's ties to Tourette's Syndrome
The Church of Jesus Christ of Latterday Saints
8250 Cornell Rd
Cincinnati Ohio 45269
Keep checking back as we start updating this blog, and making things happen.
One of the main focus' that we want to have, is on the Family. We feel it is VERY important for other TS kids to have other TS kids to hang out with and know they understand what each other is dealing with. It is also important to have that support as parents, from other parents who have been down the road you may be on, or have experienced something you are starting. HERE IT IS, THE FAMILY SUPPORT GROUP!!! We want the kids to attend, and we will be providing activities for them to enjoy with each other while you are learning from speakers, or doing other activities. There will be adult supervision at all times. You are welcome to help out any time, and check in on your children at any time. Siblings need to be apart of it too so they are welcome to join us all as well.
Our first meeting is this weekend,
Family BBQ-Bonfire-Barrel Burning of old school papers
May 27, 2010 6-10
Hutchison Home
The purpose of this event is just socializing. We have a tradition in our family of burning all our old school papers in our barrel as our last hurrah! Bring you papers to burn, with parent approval of course. (It cleans out the collections from savers as well)
We will be providing Hotdogs, Hamburgers, and Smores. Bring a potluck side dish to share.
Monday June 21st- 6:30-8:30
Jennifer Wells LSCW,
Lindner Center of Hope
Speaking on OCD Anxiety and it's ties to Tourette's Syndrome
The Church of Jesus Christ of Latterday Saints
8250 Cornell Rd
Cincinnati Ohio 45269
Keep checking back as we start updating this blog, and making things happen.
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