Tuesday, July 20, 2010

Youth Ambassador Program in the Local Community Press

Milford student spreads word about Tourette

This News Article was in the Milford-Miami Advertiser, July 7th 2010.  Tanner gave a presentation to the Neurology Department at Cincinnati Children's Hospital in June.  We were contacted by a reporter, who was excited to publish the story in the community paper showing what an excellent program the Youth Ambassador program is.  Tanner really enjoyed speaking with her.  He is excited to get going with his presentations in the community. 

If you know of any community groups who would be interested in hearing this presentation please email us the contact information and we would be happy to contact them.  We have continued to spread the information around the local school districts by emailing and mailing information to the local school districts.  It is always helpful to have a personal contact.

If you weren't aware of the Tourette Syndrome Youth Ambassador Program,  here is a little overview of what we do.

The Youth Ambassador Program was was started in 2002 by Jennifer Zwilling along with her mother Jane, and siblings Amanda and Eric.  They developed a program which teaches teens to raise awareness about Tourette Syndrome; to advocate for themselves and for others and to educate their peers and younger children with accuate information by going into classrooms, schools and clubs to teach understanding, sensitivity and tolerance of TS and its symptoms while displacing the myths and steriotypes that are often attributed to and associated with this misunderstood and misdoagnosed disorder.

Gives a 30-45 minute presentation which can be adapted to many different group types.  He shares his personal experiences, and also provides a very interactive way of understanding what it is like to have Tourette Syndrome and OCD.

Tanner is the Tourette Syndrome Associate Youth Ambassador for the state of Ohio, and Northern Kentucky.  If you are interested in scheduling a presentation  please contact Cari Hutchison at morethantics@gmail.com  or by calling 513-569-2982.

TSA 2010 National Conference Videos Online

I received this email this morning from TSA National office, letting us know the Conference videos are online.  I am so excited to watch these again.  I was able to attend the conference this year, and learned so much from the classes, some of which these videos were made from.  There is a lot of great information to be gathered from them.  I would definately encourage anyone to take a bit of time on your breaks, or at night when the kids are asleep,  (my favorite time of the day)  to take a look at these videos.  It is a great opportunity to learn more and help our families.


Tourette Syndrome Association  2010
National Conference Videos Now Online!
Three informative video sessions, developed to help children, teens, young adults and families, filmed at the April 2010 Tourette Syndrome Association (TSA) National Conference, are now available for viewing at on the TSA Website here.

BULLYING PREVENTION features a presentation by Julie Hertzog, Bullying Prevention Project Director at PACER, and Sandra Hollis, Chair TSA Education Committee. This video will bring you up to date on the proactive ideas that kids, parents, teachers and schools are using to protect and value everyone in the school. The approaches discussed will be of interest to families and educators across the country.
Cathy Budman M.D. and Michael Himle Ph. D. offer a joint program covering two important areas: Dr. Budman presents on IMPULSE CONTROL & DYSREGULATED AFFECT SYMPTOMS IN TOURETTE SYNDROME. This authoritative session reviews a range of factors reflected in behavioral issues and impulsivity. In TREATMENT OF IMPULSIVE AGGRESSION IN TS: A COLLABORATIVE APPROACH Dr. Himle presents families with background on and discussion of effective techniques you can use for addressing these often-difficult behaviors.

In ORGANIZATION & EXECUTIVE FUNCTION, Sarah Crowther, Director of Student Success, Culver-Stockton College, presents to the Conference's teen and young adult track, all of whom nod their heads in recognition and agreement...as she discusses these challenges and helps the group learn to deal with them.

TSA's April 2010 National Conference offered an array of incredible presentations, innumerable chances for attendees to hear from leading authorities, and to meet and exchange experiences with dozens of families from across the country and around the world! TSA is happy to share these selected videos from that unforgettable gathering. We hope that families, individuals, teens, young adults, educators, and providers will find valuable information in these programs.

The information provided in this material was supported by Grant/Cooperative Agreement Number DD000343 from the U. S. Centers for Disease Control and Prevention (CDC).

The contents are solely the responsibility of the authors and do not necessarily represent the official views of CDC or TSA

Thursday, July 8, 2010

NAMI National Alliance on Mental Illness August Meeting

Here is an opportunity through NAMI- National Alliance on Mental Illness.  They have monthly meetings, with guest speakers.  Although it isn't directly related to Tourette Syndrome,  it is helpful information on the Comorbid disorders that come with TS.  Aaron and I have attended their Family to Family classes and learned a great deal about the other disorders, and mental illnesses.  It really opened our eyes and our hearts to other families and disorders.

Union Township Civic Center

Queen City Room A
4350 Aicholtz Road
Cincinnati, OH45255
6:30 PM "Caring and Sharing" support group at 6:30 PM

info@nami-cc.org
http://www.namiccorg/

Here is the contact information if you would like more information on their services available.
7:30 PM Guest Speaker: Robert Kuykendal, M.D.

Topic: Ask the Doctor
Here's your chance to get some questions answered by a man with lots of experience! We're happy to welcome Dr. Kuykendal, who has too many awards and distinctions to list. Two that we will mention are the NAMI Hamilton County Exemplary Psychiatrist Award and the Hamilton County Community Mental Health Board Leadership in Psychiatry Award.