Wednesday, September 22, 2010

Scentsy Wickless Candle Fundraiser

Here is the direct link to the Fundraiser information. Just click on the link-
 Scentsy Fundraiser for TS Youth Ambassador Fund

Go to BUY FROM A PARTY

and Select
Tourette Syndrome Youth Ambassador

Our party closes  October 16th, 2010 at midnight. 

Anything ordered online will be shipped directly to the customer. 
Please note there will be a $5.00 minimum shipping fee, up to $50 then it will be 10% of the total amount of the order. 

We get 20% of everything we sell.  We have set a goal of $500.00- I would love to have it exceeded of course.

If we reach 2,000 then we get 25%.

We are using this money to purchase DVD's and INSPIRE wristbands to give away at our Youth Ambassador Presentations at the Schools.  We have 4 presentations coming up in the next month.  We also have another Youth Ambassador we are training soon, that will be in the Northern Kentucky Area.

Whom ever has the most in sells wins this..

A Scentsy Buddy (click here)  to see what different Buddies are available, and scent packs to go in it.  That is a $35 value.  The Scentsy Buddies are like Webkins, where you can play online games with them when you register.  I think Santa will be bringing a few of these for Christmas at our house.  They sure are soft, and smell good too.

If you have any questions please don't hesitate to call
 Angela Tippets Directly --at 513-307-7275


Thanks for helping us raise some money,  we will have more fun events to come up as well, we are still gathering information for the Flying Pig Marathon in the Spring.  I am excited to work towards that goal.

Friday, September 17, 2010

A Kid Talking to Kids-It's about more than Tics

Here is the latest information about the Youth Ambassador Program.  Tanner and I wrote to the editor of the Loveland Magazine and asked if he could publish information about our More than Tics Family Support Group, and the Youth Ambassador Program.  We were excited to get a little link time on the Front Page of the Loveland Magazine.  We appreciate the notice being taken and hope for more opportunties to share the information about our cause.  We have some more presentations coming up in October at Milford High School.  We are heading back to Mason Intermediate, because we had such a fabulous time with the kids, to speak to another grade about TS.  Thanks so much for inviting us back.



A Kid Talking to Kids
Dear Loveland Magazine Readers,

We are trying to get the word out to families in the Cincinnati Area about the Tourette Syndrome Youth Ambassador Presentation. We have contacted local schools however, we would like to make Families aware of this FREE benefit they can have with a Kid Talking to Kids, and educating teachers about what it is like to have Tourette Syndrome. This is a brand new program that has never been offered here before and we want to make it available to as many Families as possible. We are affiliated with the National Tourette Syndrome Association www.tsa-usa.org - It is the Tourette Syndrome Youth Ambassador Program.

This last spring, Tanner Hutchison, (age 15 ½ and Ohio’s TS Youth Ambassador) complete training in Virginia, with 35 other youth from around the nation to be able to a Youth Ambassador for the state of Ohio. Tanner is a student at Milford High School. He is going in to schools, and community events, to giving a free 30-45 minute presentation to educating groups about what it is like to have Tourette syndrome. (He was diagnosised at the age of 9) We are also looking to recruit and train more youth ambassadors here in the Cincinnati and other regions in the state of Ohio.

Tanner enjoys participating in Boy Scouts, cross country running, and singing in his school choir. He was a participant in the District IV Honors
Choir, and is pursuing Eagle Scout designation.

Tanner has been recently finished speaking to 100 6th graders at Mason Intermediate School a couple of weeks ago. Tanner spoke on behalf of a buddy who wanted to talk to his classmates about his TS and why he does some of the crazy things they ask about. We ended up finding another Boy who had TS as well, and a wonderful group of kids who were very attentive, understanding and asked fantastic questions.

We have attached a brochure with information about the program or you can go to www.tsa-usa.org website and click on the link for Youth Ambassador program. We gave a presentation to the Tic and Movement Disorder Clinic staff in the Neurology Dept. of Children’s Hospital in June to so they could see first hand the work Tanner is trying to do.

Here are news articles that have reported about how Tanner is trying to advocate for others:

TSA Nationals Newsletter article featuring the Youth Ambassadors

Other local articles written about Tanner Hutchison and his advocating work:

http://issuu.com/cincinnati/docs/milford-miami-advertiser-070710

http://local.cincinnati.com/share/news/story.aspx?sid=166534&cid=100092

In addition to this great presentation, the Hutchison Family is privately sponsoring a Family Support Group for families with members who have Tourette Syndrome. We meet monthly at The Church of Jesus Christ of Latter-day Saints at 8250 Cornell Rd in Montgomery right off I-275

This is support group is for the entire family children and siblings included. We provide activities for the children to learn and socialize as well as classes for the adults to help them advocate for their families. Here is a link for more information about our upcoming events: www.morethantics.blogspot.com.


Our next support Group Meeting features a program about Nutrition and Exercise, a Family Affair by Nutritionist and TS Mom, Laurie Dunham.
Monday September 20th, 2010 at 6:30-8:30 PM

The Church of Jesus Christ of Latter-Day Saints

8250 Cornell Rd., Cincinnati Ohio 45249

All family members will be welcome, we will be playing Broom Hockey in the Gym with the kids, and the kids need to bring a broom. There will be 2 Adult Referee parents supervising.

Warmest Regards,

Cari Hutchison
morethantics@gmail.com



Tourette Syndrome is an inherited neurobiological disorder that affects children in all racial and ethnic groups. The symptoms of this disorder are rapid, repeated, and involuntary movements and sounds called tics. It is estimated that 200,000 Americans suffer from symptoms of Tourette Syndrome and endure the stigma, isolation and psychological impact of this disorder. There is no cure for Tourette Syndrome although some individuals benefit from medication and other clinical treatment. One of the most important things that you can do for children with TS is to educate their peers and the people who they encounter each day about their disorder.



Monday, September 13, 2010
Permalink

http://www.lovelandmagazine.com/2010/09/tourette-syndrome-youth-ambassador-presentation.html

Thursday, September 2, 2010

Organizational Helps Keeping our kids on task

Having a big family, I get asked all the time how I keep everyone organized. Honestly, I can't say that I keep everyone organized all the time. I consider life a success if the FLOW-- of things is good, and I can keep everyone on task. I think every family large or small needs a system to help out with keeping everyone on track.


With the school year beginning, and getting back into the swing of ROUTINE, and SCHEDULES, here are some ideas I use in my home that I thought may be helpful for other families as well. Now don't forget we have 2 kids with Tourette Syndrome and ADHD. One of my sons has the hyperactive ADD, and the other is my inattentive, daydreamer. They are the most difficult ones to keep on task in the mornings because they get distracted with every little thing, and forget where they are at in their routine. I have realized through the years, this is not on purpose. They truly just forget what they are doing. (How many of us get downstairs, and forget what we went up there for) It is a ligitamate issue and a fact of life for us. I realized that a list would work wonders for my boys to be able to check back to help them remember where they are at in their schedule for the day.


Large Decorative Expo Board-  3 ftx 4 ft
This first picture with the list shows our very big Expo board. I took an unfinished frame, that I purchased at Hobby Lobby, in their clearance section. (It has a little ding on the corner) I then purchased shower board from Home Depot, and had it cut to the size of my frame. I then took glazier points, again purchased at Hobby Lobby framing department. (You could find frame and glazier points in any framing department at Michaels or any craft store) There you have the super sized decorative Expo board. You can clean this one with windex, and when the board gets a little worn out, just change out the shower board for a new one. (cost is $5.00) super cheap.
I hung my Super Size board, in a high traffic area in our house. We call it our Command Center. Each morning I write a list on the board with Expo marker, that my boys can come back to to see where they are at in their schedule. It is a list of all the checks they need to do in the morning. This has been a huge saving grace for me. I have found that I don't yell as much at them to focus and get on task until their medication kicks in. If I find them off task, I can just redirect them to the board, and let say, "Check the board, to see what you should be doing next." They can put a finger mark through where they at, to erase what they can complete. This gives them a sense of accomplishment, and me a sense of satisfaction that we aren't having arguments all morning and I am sending them out the door frustrated and on the wrong foot.

Another option, is using the Mirror in a bathroom. You can write your list on the mirror in expo marker, and be able to erase that each day with windex, and re-write it. This is helpful in the same way as explained above. The Mirror is a place they can keep going back to unless, you are like us where someone is always in the bathroom. But it does give you another option.


Chore Window
The second picture is of our Chore window. Many years ago, when we purchased our first home, which was an old Historic home, we saved the windows, from it when we had them replaced. This is one of the windows. I took the window, and cleaned it up, sanded it, and then I stuck some clear stickers on it, to decorate it (damask sitckers) This hangs in my kitchen so it is a great centrally located place for everyone to look. I then printed some chore lists, (we divide our chores up by rooms, or zones) Each person has a room they are in charge of in addition to their bedroom. They have too keep that room clean, clutter free, and vacuumed. On the weekends we do a "Good Clean" where we dust, and get the down and dirty stuff. (or we are suppose to do that) It doesn't always happen, but that is the idea. Each pane on my window, has a room and a day the kids are assigned to help out with dinner. These lists I printed on cardstock and cut into strips, and stuck on the window with poster tack. (this year I am going really big, and I am going to laminate the strips for durability) I then write each child's name above their assigned room for the week. We switch each Sunday for the next week. Instead of moving the chores. I just erase the names (written in expo marker) and write the name to the next pane according to the rotation. The other help I have found this year is a chore card that helps my kids remember what they need to do in each room. The other addition I am making this year is to put some hooks on the bottom of the window, and I will be hanging the chore check list on the hooks, so the kids, can refer to the check card to make sure they have done everything that is needed in their room. We have assigned nights they help with dinner, and they also have an assigned day for Laundry. My younger children I help them with washing their laundry, but by age 8-9 my kids have been able to do their own laundry. This is great to teach them responsibility, and create independence for themselves.
I know this sounds like a lot of work, it was in the beginning, but this truly has been a system that has worked for us for several years. I love that the kids can have something to refer back to to help them remember what they are doing. (remember we have 2 with ADHD) It again removes the fight out of the chores, when I can say, well did you do this and this on the card, and if they say yes, than I can quickly check it and give them feedback. I love it for my non-add kids as well, it just gives them a great tool to refer back to. It has been so helpful for me to have help around the house. I am able to do a lot of extras because everyone is helping and taking responsibility for our home. I don't want my kids to grow up thinking Mom is suppose to do everything for them. They are perfectly capable kids, even if other families don't require it, Ours does!

If you don't want to use a window, you can use a magnet board, or Expo board, or just a regular window in your house. We leave messages on sliding glass door. There are so many useful spots. We love our Lists!!

I will try to figure out how to post my documents for the chores list, and also a chore chart if you would prefer to to do.  I have used a spinning wheel to rotate jobs we well, and if I am able to post these documents to the blog I will add that to here.

I hope this is helpful information.  Sometimes, it is worth trying something new, to solve the problem.