Just a little FYI-
We have decided our group meetings for the months of November and December we will take a break from holding. This is to allow everyone to accommodate your busy schedules for all the holiday festivities and parties, and family events.
We will reconvene in January, 17th, 2011 at the Church.
The Church of Jesus Christ of Latter-day Saints
8250 Cornell Rd
Montgomery Ohio 45252
We have plans to put together
"An Amazing Math Race" for everyone to participate in. Thanks for the great idea Becknell Family! They will be heading this month's activity up. We sure appreciate their help.
We have been very busy with the Youth Ambassador presentations. Tanner just finished up a 2 more classes at Mason Intermediate. Yesterday, he presented on his home Turf- in Milford, at Milford High School to 3 psychology classes, in between tornado evacuations and classes. It was pretty exciting. He did a great job talking with the older classes, of kids, and to his peers. AWESOME!
We have one more presentation scheduled November 19th at Mason Intermediate, and then a rest for the holidays. Mason has really loved the message of acceptance, and tolerance, that Tanner has shared so this next presentation will be to a class just for informational purposes only and to share that message.
Oh, and just in case anyone has questions, or issues please understand we are not Representing the Tourette Syndrome Association.
See you in January- until then you can email us with any questions or concerns.
http://www.morethantics.blogspot.com/
Wednesday, October 27, 2010
Wednesday, October 13, 2010
Accomodations for Tourette Syndrome in School
I have a lot of parents who as me questions about 504 plans and IEPs with the schools. I thought I would post some information that has been helpful for us, with our boys to see if it would be helpful for others, in asking for accomodations for your children. It is important to remember that all school districts are different, and sometimes you won't be received well, and sometimes you will. Not all teachers are going to be on board, with you in the meetings, but in our experience, MOST will. Keep an open mind with what you are trying to achieve.
One of the most important things you can do after receiving the diagnosis of Tourette Syndrome, is to request an evaluation from the school. I have found that not all schools will find there to be a necessity to provide services, for a student with TS. It is important to remember that what the school sees, is different that what you may observe at home. We have always expected our kids to behave at school, and they try their best to keep their tics under wraps at school. However, when they come home it is as if a "Bull ran through the china shop", and everything breaks loose from what the child has been holding in all day to show he is behaving properly. We call it the Dr. Jekyll, Mr. Hyde syndrome at our house. I make sure to let the teachers know that that means you are doing your job well at home. You wouldn't want your child to behave that way at school, and are glad that he has a safe and comfortable place to let it all out, HOME. That is where he should let it out.
If you school tests and find your child doesn't meet requirements for a 504 plan, DO GIVE UP. Your child can qualify under IDEA law, as Other health impaired. You can get a letter of diagnosis, from your doctor or neurologist, and that will show that he would qualify for services. This will at least get the ball rolling.
One of the best things we did for our boys, was to seek outside testing through a neuro-psychologist, to have a full gammat of test done to determine where there were difficiencies, and where we needed to focus on for learning. This is call a Neuro-psychological testing. Here in Ohio, we have gone up to the Kettering Institute in Dayton Ohio. It was well worth the drive, we could get in a lot quicker than if we were on the waiting list at Children's hospital. You should try to get an appointment, but be reasonable and expect to get in for testing in a couple of months. You can call and see periodically if there are cancellations to see if you can move your appointment up, to try to get in faster.
The reason I say this is a GOLDEN TICKET with school, is because there is no disputing the private and professional opinion from and outside source. It will be more in depth, and very thorough, the school will have more than enough information to make and assessment, and determine a proper course. This also show our seriousness of how we are taking the education of our child. We were willing to go outside, and seek other opinions to make sure there proper services given. to our child. I think personally that it gave a little more respect with the professionals we were working with and help them see we knew what we were talking about. You definately want to be prepared, and have an idea what you are talking about when you are in the Team meeting for your child.
Some things we like to bring to the meetings, are a composition notebook, we have one for the year for our child, that we can keep notes about each meeting, and write down questions that we have for the team or comments we can share with our child. This is a great way to keep everything organized for the year, and especially for Dr. appointments, that you can keep notes of what the dr said and what the course of treatment is for each professional you will be working with. Make sure to date each entry so you can keep track of the course of treatment and dates you were in there and find them easily, all in one place.
Comments that we hear a lot from parents is that their child isn't showing signs of having trouble in class therefore they were told they don't need to have accomodations for their kid. They don't want their child to be labeled, or they can't see they don't want their child to be treated differently or be embarassed that they need extra help.
My answer to those questions is, it is a matter of thinking ahead as a parent. First you need to determine if you are going to be proactive or reactive when problems come. There is nothing worse that having a school meeting when you are in the middle of a crisis or your child is failing a class. I personally like to be proactive. Tourette Syndrome to me, is just the symptom or the physical manifestation of everything else that is going on behind the scenes. You aren't completing a 504 or IEP because of the tics in class. You are seeking services to prevent the tics from getting worse, by addressing the needs of the anxiety, OCD, or ADD/ADHD. The tics are caused because of stress brought on by those other disorders which go hand in hand for most kids who have TS. Secondly, labels, you just had one put on your child when he was diagnosised. I think you are either ready to learn and embrace the disorder, or you are not. Regardless, the diagnosis is lifechanging. You have to change your way of thinking and realize that life will not be the same as all the other kids. Your life will be different because you have different challenges and things to face, when dealing with the tics or other disorders. It becomes your NORMAL. I learned with my kids, that our normal works for us. I had to learn how to parent differently than I was taught, I had to learn to embrace, and explain things differently, and I as a person learned to be empathetic, and understanding and a lot less judgemental of others. You can't have it both ways, to be like all the other kids without TS, and also have TS, and not have it affect your life. Lastly, being treated differently, Having TS is a great "Jerk filter" you will find out who will treat you right and who won't. There are times that being treated differently is a good thing, and being included like everyone is the good too. You just have to determine when that will be, but you would hate to not have things in place if you needed the exception.
A lot of our accomodations are for preventative measures, for those bad days that come. Our kids didn't always use the accomodations, but just knowing they had the option to do so if necessary, was enough to take the pressure off that they never had to use them. Does that make sense?
Here is list of common ones we have carried from year to year through elementary school.
Please remember these are not accomodations for 1 child, we have 2 sons that have TS. I created a combined list of the different accomodations we have had through the years with both of the boys. Our oldest son is in High School, and therefore the accomodations have changed. The one blessing this year for him has been the ability to have the electronic planner. We did seek permission with his teachers and counselors for him to have it, and have stressed with him him that if he abuses the privileges, or doesn't use it, then the planner will be taken away. This has been great for him so far.
If you every have any questions regarding who to go about getting accomodations or you would like to have some one along to your meetings for support or to help you advocate, I would be happy to help you in this way. I know it is a stressful time, and you want to make sure you get the best for your child. You also want to make sure you build good relationships with the school staff and faculty as well, you do have to work with these professionals your childs school career. The teachers want to be acknowledged for their efforts just as much as the parent want to be acknowledged for ours.
Cari
One of the most important things you can do after receiving the diagnosis of Tourette Syndrome, is to request an evaluation from the school. I have found that not all schools will find there to be a necessity to provide services, for a student with TS. It is important to remember that what the school sees, is different that what you may observe at home. We have always expected our kids to behave at school, and they try their best to keep their tics under wraps at school. However, when they come home it is as if a "Bull ran through the china shop", and everything breaks loose from what the child has been holding in all day to show he is behaving properly. We call it the Dr. Jekyll, Mr. Hyde syndrome at our house. I make sure to let the teachers know that that means you are doing your job well at home. You wouldn't want your child to behave that way at school, and are glad that he has a safe and comfortable place to let it all out, HOME. That is where he should let it out.
If you school tests and find your child doesn't meet requirements for a 504 plan, DO GIVE UP. Your child can qualify under IDEA law, as Other health impaired. You can get a letter of diagnosis, from your doctor or neurologist, and that will show that he would qualify for services. This will at least get the ball rolling.
One of the best things we did for our boys, was to seek outside testing through a neuro-psychologist, to have a full gammat of test done to determine where there were difficiencies, and where we needed to focus on for learning. This is call a Neuro-psychological testing. Here in Ohio, we have gone up to the Kettering Institute in Dayton Ohio. It was well worth the drive, we could get in a lot quicker than if we were on the waiting list at Children's hospital. You should try to get an appointment, but be reasonable and expect to get in for testing in a couple of months. You can call and see periodically if there are cancellations to see if you can move your appointment up, to try to get in faster.
The reason I say this is a GOLDEN TICKET with school, is because there is no disputing the private and professional opinion from and outside source. It will be more in depth, and very thorough, the school will have more than enough information to make and assessment, and determine a proper course. This also show our seriousness of how we are taking the education of our child. We were willing to go outside, and seek other opinions to make sure there proper services given. to our child. I think personally that it gave a little more respect with the professionals we were working with and help them see we knew what we were talking about. You definately want to be prepared, and have an idea what you are talking about when you are in the Team meeting for your child.
Some things we like to bring to the meetings, are a composition notebook, we have one for the year for our child, that we can keep notes about each meeting, and write down questions that we have for the team or comments we can share with our child. This is a great way to keep everything organized for the year, and especially for Dr. appointments, that you can keep notes of what the dr said and what the course of treatment is for each professional you will be working with. Make sure to date each entry so you can keep track of the course of treatment and dates you were in there and find them easily, all in one place.
Comments that we hear a lot from parents is that their child isn't showing signs of having trouble in class therefore they were told they don't need to have accomodations for their kid. They don't want their child to be labeled, or they can't see they don't want their child to be treated differently or be embarassed that they need extra help.
My answer to those questions is, it is a matter of thinking ahead as a parent. First you need to determine if you are going to be proactive or reactive when problems come. There is nothing worse that having a school meeting when you are in the middle of a crisis or your child is failing a class. I personally like to be proactive. Tourette Syndrome to me, is just the symptom or the physical manifestation of everything else that is going on behind the scenes. You aren't completing a 504 or IEP because of the tics in class. You are seeking services to prevent the tics from getting worse, by addressing the needs of the anxiety, OCD, or ADD/ADHD. The tics are caused because of stress brought on by those other disorders which go hand in hand for most kids who have TS. Secondly, labels, you just had one put on your child when he was diagnosised. I think you are either ready to learn and embrace the disorder, or you are not. Regardless, the diagnosis is lifechanging. You have to change your way of thinking and realize that life will not be the same as all the other kids. Your life will be different because you have different challenges and things to face, when dealing with the tics or other disorders. It becomes your NORMAL. I learned with my kids, that our normal works for us. I had to learn how to parent differently than I was taught, I had to learn to embrace, and explain things differently, and I as a person learned to be empathetic, and understanding and a lot less judgemental of others. You can't have it both ways, to be like all the other kids without TS, and also have TS, and not have it affect your life. Lastly, being treated differently, Having TS is a great "Jerk filter" you will find out who will treat you right and who won't. There are times that being treated differently is a good thing, and being included like everyone is the good too. You just have to determine when that will be, but you would hate to not have things in place if you needed the exception.
A lot of our accomodations are for preventative measures, for those bad days that come. Our kids didn't always use the accomodations, but just knowing they had the option to do so if necessary, was enough to take the pressure off that they never had to use them. Does that make sense?
Here is list of common ones we have carried from year to year through elementary school.
- Child will not be punished for his tic or symptoms associatesd with hsi diagnosised disorders, ie. eye rolling, facial grimaces, sticking out tongue.
- Preferencial seating in close proximity to teacher or away from distractions.
- Large assignments will be ge broken down in to small chucks with each smaller assignment having specific due dates, to ensure projects get completed.
- All additional time for assignments if tics are interfering with his ability to complete his work. ie head jerks, blinking.
- Be allowed to use audio books or books on tape for reading logs and assignments while following along in the novel or book.
- Given additional time to take test or quizzes. May test in isolation or in small group specifically for proficiency testing.
- Utilize verbal and no verbal cues to direct or redirect, allowing breaks when necessary to relieve tics. (Trips to office, bathroom, or locker)
- Additional time or modifications for assignments if tics interfere with ability to complete school work
- Modifications to homework as needed to be agreed upon between parent and teacher.
- Extra set of textbooks for home use.
- Discipline in private setting not in front of class or peers.
- Child will not be penalized for missing supplies in class, ie pencil papers, etc. but be allowed to return to locker to retrieve then instead. (Executive functions, ADHD)
- Be allowed to leave class a minute or 2 early so he can make the transition from one class to another in a timely manner and relieve anxiety of the hallways.
- Allow assignments to be emailed as attachments, message, or faxed to teacher upon completion, as well as turned in paper form at school. (in case of lost papers, Executive Function)
- Give child verbal cues to get them jumpstarted on assigment, remind them of the sequence of what they need to next.
- Child allowed to type written assignments.
- Child be allowed to use an electronic planner with alarm function, to remind of what he needs to do. (ADHD, very helpful for Jr. High, High School)
- Child be allowed to visit a counselor or designated teacher on an as needed basis to assis working through any anxiey or emotional difficulties that may arise.
- Contact parents when 2 assignments behind in class.
- Child's disorders will be considered when a discilpine situation arises.
- Child be allowed breaks during lengthy tests or proficiency exams.
- Teachers be notified of child's disorder, at the beginning of the year.
Please remember these are not accomodations for 1 child, we have 2 sons that have TS. I created a combined list of the different accomodations we have had through the years with both of the boys. Our oldest son is in High School, and therefore the accomodations have changed. The one blessing this year for him has been the ability to have the electronic planner. We did seek permission with his teachers and counselors for him to have it, and have stressed with him him that if he abuses the privileges, or doesn't use it, then the planner will be taken away. This has been great for him so far.
If you every have any questions regarding who to go about getting accomodations or you would like to have some one along to your meetings for support or to help you advocate, I would be happy to help you in this way. I know it is a stressful time, and you want to make sure you get the best for your child. You also want to make sure you build good relationships with the school staff and faculty as well, you do have to work with these professionals your childs school career. The teachers want to be acknowledged for their efforts just as much as the parent want to be acknowledged for ours.
Cari
Monday, October 4, 2010
Tourette Syndrome Quick Reference Resources
The other day I was researching out information on ADHD, and executive disfunction, and I came across some great information I thought would be great to share with everyone. If you don't know Executive disfunction is related to ADHD. It is a component that plays in to your ability to organize your thoughts, and yourself. I like to think of it as my secretary skills.
Tanner and Mason both struggle with this issue with their ADD/ADHD. We have to work really hard to make sure there are set due dates for their homework, and also that they are planning out to make sure they are accomplishing little bits of assignments along the way on big projects. This can also be a factor with handing in assignments, remembering when things are due, and what supplies you need to bring home with you. It is like a LACK of a big picture or sequence of what happens next.
We have had a difficult time at time getting teachers to understand this missing component and it wasn't until this year until we had our Psychiatrist write a letter explaining how Executive Disfunction plays into the ADHD that we were able to get someone to believe we knew what we were talking about.
Hopefully this link will be helpful in explaining the different aspects of this disorder. I printed it out just to have on hand to take with me to school meetings. (Click on the link)
Executive Function-Dr. Thomas Brown Ph.d the 6 Aspects of a misunderstood disorder
Another Favorite website I love is Tourette Syndrome Leslie Packard Ph.d
You can find all kinds of information on there to help with education advocacy as well as multiple other helps. One of the pdf files I love to reference is this one on Common Tics . When Tanner was first diagnosised, I had no idea what was a tic and what wasn't. You can imagine that a lot of these tics listed can be looked at as "Normal" behaviors in all of us. What you have to understand about a person with Tourette Syndrome is these are all done in an excess amount, or in patterns and sequences. I can think of several tics my boys have shown where they have several that have to go in a certain order, or one tic that is done a certain amount of times, or just a constant tic. It is easy to justify the tics for those of us who don't have Tourette Syndrome. I think this is easy as a parent to say, well maybe it is just allergies, or just this or just that. But if you really think about it, sniffing could be allergies, however, allergies would cause stress on a TSer's body, and cause the tics to be worse at certain times of the year. So if you are thinking that is is just that time of year, and they will go away, and they don't, check out the allergist, and then watch the to see if there is pattern to the tics.
I have come to realize that my boys are very aware of their bodies, and as I helped them become more aware of the things they were doing and we were both figuring out what was going on they became even more comfortable about sharing with me what what a tic and what wasn't. If I wasn't sure I would ask them, and if they didn't know either, then we would watch together, and keep a list to see how things worked out, because REMEMBER, they can come and go, WAX AND WANE. They will come back during times throughout their life. We have had them sneak up for just a day or so, and go away again. Our comment to each other is, "OOO, haven't heard or seen that one in a while, looks like you had a sneak attack."
I think being more informed and treating Tourette Syndrome like it is just like every other diagnosis is the best way for all to accept what is to come. It is what it is, it is who God sent you here to be, What are you going to do with what has been given to you. This goes for being the parent too. How are you going to approach helping your child accept and love themselves and their Tourettes.
One of my favorite quotes, is by Marjory Pay Hinckley about having a sense of Humor...
"The only way to get through this life is to laugh your way through it. You either have to laugh or cry. I prefer to laugh. Crying gives me a headache."
Isn't that so true.- If you can't laugh at the moment, you will probably find some humor in the situation at some point, even if it is when looking back.
Tanner and Mason both struggle with this issue with their ADD/ADHD. We have to work really hard to make sure there are set due dates for their homework, and also that they are planning out to make sure they are accomplishing little bits of assignments along the way on big projects. This can also be a factor with handing in assignments, remembering when things are due, and what supplies you need to bring home with you. It is like a LACK of a big picture or sequence of what happens next.
We have had a difficult time at time getting teachers to understand this missing component and it wasn't until this year until we had our Psychiatrist write a letter explaining how Executive Disfunction plays into the ADHD that we were able to get someone to believe we knew what we were talking about.
Hopefully this link will be helpful in explaining the different aspects of this disorder. I printed it out just to have on hand to take with me to school meetings. (Click on the link)
Executive Function-Dr. Thomas Brown Ph.d the 6 Aspects of a misunderstood disorder
Another Favorite website I love is Tourette Syndrome Leslie Packard Ph.d
You can find all kinds of information on there to help with education advocacy as well as multiple other helps. One of the pdf files I love to reference is this one on Common Tics . When Tanner was first diagnosised, I had no idea what was a tic and what wasn't. You can imagine that a lot of these tics listed can be looked at as "Normal" behaviors in all of us. What you have to understand about a person with Tourette Syndrome is these are all done in an excess amount, or in patterns and sequences. I can think of several tics my boys have shown where they have several that have to go in a certain order, or one tic that is done a certain amount of times, or just a constant tic. It is easy to justify the tics for those of us who don't have Tourette Syndrome. I think this is easy as a parent to say, well maybe it is just allergies, or just this or just that. But if you really think about it, sniffing could be allergies, however, allergies would cause stress on a TSer's body, and cause the tics to be worse at certain times of the year. So if you are thinking that is is just that time of year, and they will go away, and they don't, check out the allergist, and then watch the to see if there is pattern to the tics.
I have come to realize that my boys are very aware of their bodies, and as I helped them become more aware of the things they were doing and we were both figuring out what was going on they became even more comfortable about sharing with me what what a tic and what wasn't. If I wasn't sure I would ask them, and if they didn't know either, then we would watch together, and keep a list to see how things worked out, because REMEMBER, they can come and go, WAX AND WANE. They will come back during times throughout their life. We have had them sneak up for just a day or so, and go away again. Our comment to each other is, "OOO, haven't heard or seen that one in a while, looks like you had a sneak attack."
I think being more informed and treating Tourette Syndrome like it is just like every other diagnosis is the best way for all to accept what is to come. It is what it is, it is who God sent you here to be, What are you going to do with what has been given to you. This goes for being the parent too. How are you going to approach helping your child accept and love themselves and their Tourettes.
One of my favorite quotes, is by Marjory Pay Hinckley about having a sense of Humor...
"The only way to get through this life is to laugh your way through it. You either have to laugh or cry. I prefer to laugh. Crying gives me a headache."
Isn't that so true.- If you can't laugh at the moment, you will probably find some humor in the situation at some point, even if it is when looking back.
Wednesday, September 22, 2010
Scentsy Wickless Candle Fundraiser
Here is the direct link to the Fundraiser information. Just click on the link-
Scentsy Fundraiser for TS Youth Ambassador Fund
Go to BUY FROM A PARTY
and Select
Tourette Syndrome Youth Ambassador
Our party closes October 16th, 2010 at midnight.
Anything ordered online will be shipped directly to the customer.
Please note there will be a $5.00 minimum shipping fee, up to $50 then it will be 10% of the total amount of the order.
We get 20% of everything we sell. We have set a goal of $500.00- I would love to have it exceeded of course.
If we reach 2,000 then we get 25%.
We are using this money to purchase DVD's and INSPIRE wristbands to give away at our Youth Ambassador Presentations at the Schools. We have 4 presentations coming up in the next month. We also have another Youth Ambassador we are training soon, that will be in the Northern Kentucky Area.
Whom ever has the most in sells wins this..
A Scentsy Buddy (click here) to see what different Buddies are available, and scent packs to go in it. That is a $35 value. The Scentsy Buddies are like Webkins, where you can play online games with them when you register. I think Santa will be bringing a few of these for Christmas at our house. They sure are soft, and smell good too.
If you have any questions please don't hesitate to call
Angela Tippets Directly --at 513-307-7275
Thanks for helping us raise some money, we will have more fun events to come up as well, we are still gathering information for the Flying Pig Marathon in the Spring. I am excited to work towards that goal.
Scentsy Fundraiser for TS Youth Ambassador Fund
Go to BUY FROM A PARTY
and Select
Tourette Syndrome Youth Ambassador
Our party closes October 16th, 2010 at midnight.
Anything ordered online will be shipped directly to the customer.
Please note there will be a $5.00 minimum shipping fee, up to $50 then it will be 10% of the total amount of the order.
We get 20% of everything we sell. We have set a goal of $500.00- I would love to have it exceeded of course.
If we reach 2,000 then we get 25%.
We are using this money to purchase DVD's and INSPIRE wristbands to give away at our Youth Ambassador Presentations at the Schools. We have 4 presentations coming up in the next month. We also have another Youth Ambassador we are training soon, that will be in the Northern Kentucky Area.
Whom ever has the most in sells wins this..
A Scentsy Buddy (click here) to see what different Buddies are available, and scent packs to go in it. That is a $35 value. The Scentsy Buddies are like Webkins, where you can play online games with them when you register. I think Santa will be bringing a few of these for Christmas at our house. They sure are soft, and smell good too.
If you have any questions please don't hesitate to call
Angela Tippets Directly --at 513-307-7275
Thanks for helping us raise some money, we will have more fun events to come up as well, we are still gathering information for the Flying Pig Marathon in the Spring. I am excited to work towards that goal.
Friday, September 17, 2010
A Kid Talking to Kids-It's about more than Tics
Here is the latest information about the Youth Ambassador Program. Tanner and I wrote to the editor of the Loveland Magazine and asked if he could publish information about our More than Tics Family Support Group, and the Youth Ambassador Program. We were excited to get a little link time on the Front Page of the Loveland Magazine. We appreciate the notice being taken and hope for more opportunties to share the information about our cause. We have some more presentations coming up in October at Milford High School. We are heading back to Mason Intermediate, because we had such a fabulous time with the kids, to speak to another grade about TS. Thanks so much for inviting us back.
A Kid Talking to Kids
Dear Loveland Magazine Readers,
We are trying to get the word out to families in the Cincinnati Area about the Tourette Syndrome Youth Ambassador Presentation. We have contacted local schools however, we would like to make Families aware of this FREE benefit they can have with a Kid Talking to Kids, and educating teachers about what it is like to have Tourette Syndrome. This is a brand new program that has never been offered here before and we want to make it available to as many Families as possible. We are affiliated with the National Tourette Syndrome Association www.tsa-usa.org - It is the Tourette Syndrome Youth Ambassador Program.
This last spring, Tanner Hutchison, (age 15 ½ and Ohio’s TS Youth Ambassador) complete training in Virginia, with 35 other youth from around the nation to be able to a Youth Ambassador for the state of Ohio. Tanner is a student at Milford High School. He is going in to schools, and community events, to giving a free 30-45 minute presentation to educating groups about what it is like to have Tourette syndrome. (He was diagnosised at the age of 9) We are also looking to recruit and train more youth ambassadors here in the Cincinnati and other regions in the state of Ohio.
Tanner enjoys participating in Boy Scouts, cross country running, and singing in his school choir. He was a participant in the District IV Honors
Choir, and is pursuing Eagle Scout designation.
Tanner has been recently finished speaking to 100 6th graders at Mason Intermediate School a couple of weeks ago. Tanner spoke on behalf of a buddy who wanted to talk to his classmates about his TS and why he does some of the crazy things they ask about. We ended up finding another Boy who had TS as well, and a wonderful group of kids who were very attentive, understanding and asked fantastic questions.
We have attached a brochure with information about the program or you can go to www.tsa-usa.org website and click on the link for Youth Ambassador program. We gave a presentation to the Tic and Movement Disorder Clinic staff in the Neurology Dept. of Children’s Hospital in June to so they could see first hand the work Tanner is trying to do.
Here are news articles that have reported about how Tanner is trying to advocate for others:
TSA Nationals Newsletter article featuring the Youth Ambassadors
Other local articles written about Tanner Hutchison and his advocating work:
http://issuu.com/cincinnati/docs/milford-miami-advertiser-070710
http://local.cincinnati.com/share/news/story.aspx?sid=166534&cid=100092
In addition to this great presentation, the Hutchison Family is privately sponsoring a Family Support Group for families with members who have Tourette Syndrome. We meet monthly at The Church of Jesus Christ of Latter-day Saints at 8250 Cornell Rd in Montgomery right off I-275
This is support group is for the entire family children and siblings included. We provide activities for the children to learn and socialize as well as classes for the adults to help them advocate for their families. Here is a link for more information about our upcoming events: www.morethantics.blogspot.com.
Our next support Group Meeting features a program about Nutrition and Exercise, a Family Affair by Nutritionist and TS Mom, Laurie Dunham.
Monday September 20th, 2010 at 6:30-8:30 PM
The Church of Jesus Christ of Latter-Day Saints
8250 Cornell Rd., Cincinnati Ohio 45249
All family members will be welcome, we will be playing Broom Hockey in the Gym with the kids, and the kids need to bring a broom. There will be 2 Adult Referee parents supervising.
Warmest Regards,
Cari Hutchison
morethantics@gmail.com
Tourette Syndrome is an inherited neurobiological disorder that affects children in all racial and ethnic groups. The symptoms of this disorder are rapid, repeated, and involuntary movements and sounds called tics. It is estimated that 200,000 Americans suffer from symptoms of Tourette Syndrome and endure the stigma, isolation and psychological impact of this disorder. There is no cure for Tourette Syndrome although some individuals benefit from medication and other clinical treatment. One of the most important things that you can do for children with TS is to educate their peers and the people who they encounter each day about their disorder.
Monday, September 13, 2010
Permalink
http://www.lovelandmagazine.com/2010/09/tourette-syndrome-youth-ambassador-presentation.html
A Kid Talking to Kids
Dear Loveland Magazine Readers,
We are trying to get the word out to families in the Cincinnati Area about the Tourette Syndrome Youth Ambassador Presentation. We have contacted local schools however, we would like to make Families aware of this FREE benefit they can have with a Kid Talking to Kids, and educating teachers about what it is like to have Tourette Syndrome. This is a brand new program that has never been offered here before and we want to make it available to as many Families as possible. We are affiliated with the National Tourette Syndrome Association www.tsa-usa.org - It is the Tourette Syndrome Youth Ambassador Program.
This last spring, Tanner Hutchison, (age 15 ½ and Ohio’s TS Youth Ambassador) complete training in Virginia, with 35 other youth from around the nation to be able to a Youth Ambassador for the state of Ohio. Tanner is a student at Milford High School. He is going in to schools, and community events, to giving a free 30-45 minute presentation to educating groups about what it is like to have Tourette syndrome. (He was diagnosised at the age of 9) We are also looking to recruit and train more youth ambassadors here in the Cincinnati and other regions in the state of Ohio.
Tanner enjoys participating in Boy Scouts, cross country running, and singing in his school choir. He was a participant in the District IV Honors
Choir, and is pursuing Eagle Scout designation.
Tanner has been recently finished speaking to 100 6th graders at Mason Intermediate School a couple of weeks ago. Tanner spoke on behalf of a buddy who wanted to talk to his classmates about his TS and why he does some of the crazy things they ask about. We ended up finding another Boy who had TS as well, and a wonderful group of kids who were very attentive, understanding and asked fantastic questions.
We have attached a brochure with information about the program or you can go to www.tsa-usa.org website and click on the link for Youth Ambassador program. We gave a presentation to the Tic and Movement Disorder Clinic staff in the Neurology Dept. of Children’s Hospital in June to so they could see first hand the work Tanner is trying to do.
Here are news articles that have reported about how Tanner is trying to advocate for others:
TSA Nationals Newsletter article featuring the Youth Ambassadors
Other local articles written about Tanner Hutchison and his advocating work:
http://issuu.com/cincinnati/docs/milford-miami-advertiser-070710
http://local.cincinnati.com/share/news/story.aspx?sid=166534&cid=100092
In addition to this great presentation, the Hutchison Family is privately sponsoring a Family Support Group for families with members who have Tourette Syndrome. We meet monthly at The Church of Jesus Christ of Latter-day Saints at 8250 Cornell Rd in Montgomery right off I-275
This is support group is for the entire family children and siblings included. We provide activities for the children to learn and socialize as well as classes for the adults to help them advocate for their families. Here is a link for more information about our upcoming events: www.morethantics.blogspot.com.
Our next support Group Meeting features a program about Nutrition and Exercise, a Family Affair by Nutritionist and TS Mom, Laurie Dunham.
Monday September 20th, 2010 at 6:30-8:30 PM
The Church of Jesus Christ of Latter-Day Saints
8250 Cornell Rd., Cincinnati Ohio 45249
All family members will be welcome, we will be playing Broom Hockey in the Gym with the kids, and the kids need to bring a broom. There will be 2 Adult Referee parents supervising.
Warmest Regards,
Cari Hutchison
morethantics@gmail.com
Tourette Syndrome is an inherited neurobiological disorder that affects children in all racial and ethnic groups. The symptoms of this disorder are rapid, repeated, and involuntary movements and sounds called tics. It is estimated that 200,000 Americans suffer from symptoms of Tourette Syndrome and endure the stigma, isolation and psychological impact of this disorder. There is no cure for Tourette Syndrome although some individuals benefit from medication and other clinical treatment. One of the most important things that you can do for children with TS is to educate their peers and the people who they encounter each day about their disorder.
Monday, September 13, 2010
Permalink
http://www.lovelandmagazine.com/2010/09/tourette-syndrome-youth-ambassador-presentation.html
Thursday, September 2, 2010
Organizational Helps Keeping our kids on task
Having a big family, I get asked all the time how I keep everyone organized. Honestly, I can't say that I keep everyone organized all the time. I consider life a success if the FLOW-- of things is good, and I can keep everyone on task. I think every family large or small needs a system to help out with keeping everyone on track.
With the school year beginning, and getting back into the swing of ROUTINE, and SCHEDULES, here are some ideas I use in my home that I thought may be helpful for other families as well. Now don't forget we have 2 kids with Tourette Syndrome and ADHD. One of my sons has the hyperactive ADD, and the other is my inattentive, daydreamer. They are the most difficult ones to keep on task in the mornings because they get distracted with every little thing, and forget where they are at in their routine. I have realized through the years, this is not on purpose. They truly just forget what they are doing. (How many of us get downstairs, and forget what we went up there for) It is a ligitamate issue and a fact of life for us. I realized that a list would work wonders for my boys to be able to check back to help them remember where they are at in their schedule for the day.
This first picture with the list shows our very big Expo board. I took an unfinished frame, that I purchased at Hobby Lobby, in their clearance section. (It has a little ding on the corner) I then purchased shower board from Home Depot, and had it cut to the size of my frame. I then took glazier points, again purchased at Hobby Lobby framing department. (You could find frame and glazier points in any framing department at Michaels or any craft store) There you have the super sized decorative Expo board. You can clean this one with windex, and when the board gets a little worn out, just change out the shower board for a new one. (cost is $5.00) super cheap.
I hung my Super Size board, in a high traffic area in our house. We call it our Command Center. Each morning I write a list on the board with Expo marker, that my boys can come back to to see where they are at in their schedule. It is a list of all the checks they need to do in the morning. This has been a huge saving grace for me. I have found that I don't yell as much at them to focus and get on task until their medication kicks in. If I find them off task, I can just redirect them to the board, and let say, "Check the board, to see what you should be doing next." They can put a finger mark through where they at, to erase what they can complete. This gives them a sense of accomplishment, and me a sense of satisfaction that we aren't having arguments all morning and I am sending them out the door frustrated and on the wrong foot.
Another option, is using the Mirror in a bathroom. You can write your list on the mirror in expo marker, and be able to erase that each day with windex, and re-write it. This is helpful in the same way as explained above. The Mirror is a place they can keep going back to unless, you are like us where someone is always in the bathroom. But it does give you another option.
The second picture is of our Chore window. Many years ago, when we purchased our first home, which was an old Historic home, we saved the windows, from it when we had them replaced. This is one of the windows. I took the window, and cleaned it up, sanded it, and then I stuck some clear stickers on it, to decorate it (damask sitckers) This hangs in my kitchen so it is a great centrally located place for everyone to look. I then printed some chore lists, (we divide our chores up by rooms, or zones) Each person has a room they are in charge of in addition to their bedroom. They have too keep that room clean, clutter free, and vacuumed. On the weekends we do a "Good Clean" where we dust, and get the down and dirty stuff. (or we are suppose to do that) It doesn't always happen, but that is the idea. Each pane on my window, has a room and a day the kids are assigned to help out with dinner. These lists I printed on cardstock and cut into strips, and stuck on the window with poster tack. (this year I am going really big, and I am going to laminate the strips for durability) I then write each child's name above their assigned room for the week. We switch each Sunday for the next week. Instead of moving the chores. I just erase the names (written in expo marker) and write the name to the next pane according to the rotation. The other help I have found this year is a chore card that helps my kids remember what they need to do in each room. The other addition I am making this year is to put some hooks on the bottom of the window, and I will be hanging the chore check list on the hooks, so the kids, can refer to the check card to make sure they have done everything that is needed in their room. We have assigned nights they help with dinner, and they also have an assigned day for Laundry. My younger children I help them with washing their laundry, but by age 8-9 my kids have been able to do their own laundry. This is great to teach them responsibility, and create independence for themselves.
I know this sounds like a lot of work, it was in the beginning, but this truly has been a system that has worked for us for several years. I love that the kids can have something to refer back to to help them remember what they are doing. (remember we have 2 with ADHD) It again removes the fight out of the chores, when I can say, well did you do this and this on the card, and if they say yes, than I can quickly check it and give them feedback. I love it for my non-add kids as well, it just gives them a great tool to refer back to. It has been so helpful for me to have help around the house. I am able to do a lot of extras because everyone is helping and taking responsibility for our home. I don't want my kids to grow up thinking Mom is suppose to do everything for them. They are perfectly capable kids, even if other families don't require it, Ours does!
If you don't want to use a window, you can use a magnet board, or Expo board, or just a regular window in your house. We leave messages on sliding glass door. There are so many useful spots. We love our Lists!!
I will try to figure out how to post my documents for the chores list, and also a chore chart if you would prefer to to do. I have used a spinning wheel to rotate jobs we well, and if I am able to post these documents to the blog I will add that to here.
I hope this is helpful information. Sometimes, it is worth trying something new, to solve the problem.
With the school year beginning, and getting back into the swing of ROUTINE, and SCHEDULES, here are some ideas I use in my home that I thought may be helpful for other families as well. Now don't forget we have 2 kids with Tourette Syndrome and ADHD. One of my sons has the hyperactive ADD, and the other is my inattentive, daydreamer. They are the most difficult ones to keep on task in the mornings because they get distracted with every little thing, and forget where they are at in their routine. I have realized through the years, this is not on purpose. They truly just forget what they are doing. (How many of us get downstairs, and forget what we went up there for) It is a ligitamate issue and a fact of life for us. I realized that a list would work wonders for my boys to be able to check back to help them remember where they are at in their schedule for the day.
 |
| Large Decorative Expo Board- 3 ftx 4 ft |
I hung my Super Size board, in a high traffic area in our house. We call it our Command Center. Each morning I write a list on the board with Expo marker, that my boys can come back to to see where they are at in their schedule. It is a list of all the checks they need to do in the morning. This has been a huge saving grace for me. I have found that I don't yell as much at them to focus and get on task until their medication kicks in. If I find them off task, I can just redirect them to the board, and let say, "Check the board, to see what you should be doing next." They can put a finger mark through where they at, to erase what they can complete. This gives them a sense of accomplishment, and me a sense of satisfaction that we aren't having arguments all morning and I am sending them out the door frustrated and on the wrong foot.
Another option, is using the Mirror in a bathroom. You can write your list on the mirror in expo marker, and be able to erase that each day with windex, and re-write it. This is helpful in the same way as explained above. The Mirror is a place they can keep going back to unless, you are like us where someone is always in the bathroom. But it does give you another option.
 |
| Chore Window |
I know this sounds like a lot of work, it was in the beginning, but this truly has been a system that has worked for us for several years. I love that the kids can have something to refer back to to help them remember what they are doing. (remember we have 2 with ADHD) It again removes the fight out of the chores, when I can say, well did you do this and this on the card, and if they say yes, than I can quickly check it and give them feedback. I love it for my non-add kids as well, it just gives them a great tool to refer back to. It has been so helpful for me to have help around the house. I am able to do a lot of extras because everyone is helping and taking responsibility for our home. I don't want my kids to grow up thinking Mom is suppose to do everything for them. They are perfectly capable kids, even if other families don't require it, Ours does!
If you don't want to use a window, you can use a magnet board, or Expo board, or just a regular window in your house. We leave messages on sliding glass door. There are so many useful spots. We love our Lists!!
I will try to figure out how to post my documents for the chores list, and also a chore chart if you would prefer to to do. I have used a spinning wheel to rotate jobs we well, and if I am able to post these documents to the blog I will add that to here.
I hope this is helpful information. Sometimes, it is worth trying something new, to solve the problem.
Tuesday, August 24, 2010
Follow up from August Support Group Meeting
Hello Everyone,
We had a great turnout last night at our support group meeting. It was a lot of fun for our family for sure, and I hope that it was for all of those who were able to make it as well. We played an improvised game of Tourette Syndrome Jeopardy- with 5 topics of Common Tics, Environmental Factors that worsen Tics, Positive Things about having Tourette Syndrome, Lines to use when all else fails. We saw a lot of smiles, and kids who even took notes on Tanner's presentation, and very attentive kids who were looking for what the next prize would be. It was great fun! We will have to pull it out again and change around the topics for something else.
If you would like me to email you a copy of our home made Game just let me know I would be happy to do so. I learn how to do things better each time we meet so Thank you for being patient with me in my mistakes, and shake ups.
Here are the links I promised for the reference link for information for you to practice role playing with your kids on the one liners, or our subject of Lines to use when all else fails. This is the link for the website to Dr. Duncan McKinlay. He has a great way to bring humor to the table with talking about TS.
http://www.lifesatwitch.com/helpful.html
http://www.lifesatwitch.com/datafiles/beat_the_bully.pdf
http://www.lifesatwitch.com/datafiles/careers.pdf
Our goal with the Support Group is to Bring you as much information as possible and let you make the decision of what you would like to use or not. There is a lot of great resources out there, and you are the best people to judge what is right for your family.
Finally,
We will be starting back at meeting consistently the next few month, probably taking December off for the Holidays. Septembers subject is Health and Nutrition and excercise with Laurie Durham a nutritionist/TS Parent speaking to us. We will let you know soon of the specific date when we get the building scheduled. We have had a lot of interest and excitement in the Flying Pig Marathon TS Team for May, and working through the winter, training etc. I want to make sure I add a personal footnote on here, I am setting the goal myself to at least walk the 1/2 marathon, and it is a loftly goal for me, especially since I have 50+ lbs to lose as well. So if you were at all ever thinking that there is just absolutely no way, you would do this, remember sometimes we need to think BIG and set our sites for the impossible, or kids do it on a daily basis, and we also encourage them as well. There is an event for everyone from kids run to 10K, to working the race. Please consider what you can do to contribute, and everything we earn, will go directly into helping our support group, and the Youth Ambassador fund.
Aaron and I would sincerely like some additional help in planning and making this fundraiser happen, so if you are at all interested in helping. PLEASE call or email me. We will welcome the help with open arms, and happy hearts, all 50+ overweight lbs of me.
We hope you all have a wonderful beginning to the school year, and PLEASE DON'T BE AFRAID TO ASK FOR HELP WITH YOUR IEP OR 504 MEETINGS, OR ANY SCHOOL ISSUES YOU MAY HAVE. That is what we are here for.
Happy Days,
Cari and Aaron Hutchison & Gang
We had a great turnout last night at our support group meeting. It was a lot of fun for our family for sure, and I hope that it was for all of those who were able to make it as well. We played an improvised game of Tourette Syndrome Jeopardy- with 5 topics of Common Tics, Environmental Factors that worsen Tics, Positive Things about having Tourette Syndrome, Lines to use when all else fails. We saw a lot of smiles, and kids who even took notes on Tanner's presentation, and very attentive kids who were looking for what the next prize would be. It was great fun! We will have to pull it out again and change around the topics for something else.
If you would like me to email you a copy of our home made Game just let me know I would be happy to do so. I learn how to do things better each time we meet so Thank you for being patient with me in my mistakes, and shake ups.
Here are the links I promised for the reference link for information for you to practice role playing with your kids on the one liners, or our subject of Lines to use when all else fails. This is the link for the website to Dr. Duncan McKinlay. He has a great way to bring humor to the table with talking about TS.
http://www.lifesatwitch.com/helpful.html
http://www.lifesatwitch.com/datafiles/beat_the_bully.pdf
http://www.lifesatwitch.com/datafiles/careers.pdf
Our goal with the Support Group is to Bring you as much information as possible and let you make the decision of what you would like to use or not. There is a lot of great resources out there, and you are the best people to judge what is right for your family.
Finally,
We will be starting back at meeting consistently the next few month, probably taking December off for the Holidays. Septembers subject is Health and Nutrition and excercise with Laurie Durham a nutritionist/TS Parent speaking to us. We will let you know soon of the specific date when we get the building scheduled. We have had a lot of interest and excitement in the Flying Pig Marathon TS Team for May, and working through the winter, training etc. I want to make sure I add a personal footnote on here, I am setting the goal myself to at least walk the 1/2 marathon, and it is a loftly goal for me, especially since I have 50+ lbs to lose as well. So if you were at all ever thinking that there is just absolutely no way, you would do this, remember sometimes we need to think BIG and set our sites for the impossible, or kids do it on a daily basis, and we also encourage them as well. There is an event for everyone from kids run to 10K, to working the race. Please consider what you can do to contribute, and everything we earn, will go directly into helping our support group, and the Youth Ambassador fund.
Aaron and I would sincerely like some additional help in planning and making this fundraiser happen, so if you are at all interested in helping. PLEASE call or email me. We will welcome the help with open arms, and happy hearts, all 50+ overweight lbs of me.
We hope you all have a wonderful beginning to the school year, and PLEASE DON'T BE AFRAID TO ASK FOR HELP WITH YOUR IEP OR 504 MEETINGS, OR ANY SCHOOL ISSUES YOU MAY HAVE. That is what we are here for.
Happy Days,
Cari and Aaron Hutchison & Gang
Monday, August 23, 2010
Hello Everyone,
Just a reminder of our Family Support Group Meeting at the
Church of Jesus Christ of Latter-Day Saints,
8250 Cornell Rd, Montgomery.
6:30-8:00
TONIGHT!!
Tanner is presenting the Youth Ambassador Presentation, and we have information for everyone to pass out to their schools so we can get some presentations scheduled for the upcoming school year. We will have packets for your to present to your School administrators.
We also have a fun Game that we have prepared for the kids to play and prizes to win, just like on Jeopardy. It will be a lot of fun. We will be meeting in the gym.
OH AN DON'T FORGET THE HOT FUDGE SUNDAE BAR- that is why I need RSVP so we can assign a topping for your family to bring.
I have attached information that may be helpful for you, as you prepare to go back to school in the coming weeks, and getting everything in order with your 504-plans and your IEP stuff. These are pdf files that I purchased off the TSA-usa.org website. I thought it would be more cost effective if you printed them yourselves at home. Also I thought they would be a good resource to educate yourselves and provide helps for you to give to the schools and teachers.
If there is ever a need or you would just like more support in your 504 or IEP meetings, I would be happy to come and help advocate for you or help you prepare for those meetings. Feel free call upon us to help you in that way, that is what this is all meant for.
Next order of business,
I have been looking into forming a team to run/walk/ kids run in the Flying Pig Marathon in May. We can get an individual webpage through tsa to raise the funds, and also, the money we collect we can have them ear-marked for the youth Ambassador program to help with training more kids, and facilitiate all the expenses of printing and purchasing bracelets to hand out etc.
Next Month we are going to spend some time on talking about Nutrition and Excercise and Tourette's, How it can be beneficial for the and families. Laurie Dunham who is a member of our support Group and has a son with TS will be talking to us about the that subject and this would also be a great opportunity to start the interest in getting ready for the Flying Pig Marathon, and help the kids set goals to work towards, with walking or running which every you choose. If you are not familiar with the marathon, there are several different catagories, that you can enter in, and also training methods, etc. we are going to train as a family, and also work towards, the kids setting a goal as well. There is a kids run, 5 k 10K, 1/2 marathon, and the full marathon. so there is something for everyone. It is good to think ahead and look to see what your family can do. We will present more informatoin on this in September- with our Group Goals.
If you have any other ideas for events or classes you would like to know more informaiton on please let me know. I have been looking into Having FUN time in October, with a Corn maze and Pumpkin patch visit, and I have also been looking into taking a tour of a theraputic riding facility, which may be an idea for some of the families to see if this would be an alternative way for anxiety therapy, and scensory integration help. We still have several other months to fill with good ideas, and helps for informational classes. Share your ideas!!! or Resources- This isn't just about me planning and choosing everything I would like to have input from the families too or if you have a business or fun activity then let me know let's book it.
Okay, well enough said for now! See you all tonight for fun and games and ice cream.
Cari
Just a reminder of our Family Support Group Meeting at the
Church of Jesus Christ of Latter-Day Saints,
8250 Cornell Rd, Montgomery.
6:30-8:00
TONIGHT!!
Tanner is presenting the Youth Ambassador Presentation, and we have information for everyone to pass out to their schools so we can get some presentations scheduled for the upcoming school year. We will have packets for your to present to your School administrators.
We also have a fun Game that we have prepared for the kids to play and prizes to win, just like on Jeopardy. It will be a lot of fun. We will be meeting in the gym.
OH AN DON'T FORGET THE HOT FUDGE SUNDAE BAR- that is why I need RSVP so we can assign a topping for your family to bring.
I have attached information that may be helpful for you, as you prepare to go back to school in the coming weeks, and getting everything in order with your 504-plans and your IEP stuff. These are pdf files that I purchased off the TSA-usa.org website. I thought it would be more cost effective if you printed them yourselves at home. Also I thought they would be a good resource to educate yourselves and provide helps for you to give to the schools and teachers.
If there is ever a need or you would just like more support in your 504 or IEP meetings, I would be happy to come and help advocate for you or help you prepare for those meetings. Feel free call upon us to help you in that way, that is what this is all meant for.
Next order of business,
I have been looking into forming a team to run/walk/ kids run in the Flying Pig Marathon in May. We can get an individual webpage through tsa to raise the funds, and also, the money we collect we can have them ear-marked for the youth Ambassador program to help with training more kids, and facilitiate all the expenses of printing and purchasing bracelets to hand out etc.
Next Month we are going to spend some time on talking about Nutrition and Excercise and Tourette's, How it can be beneficial for the and families. Laurie Dunham who is a member of our support Group and has a son with TS will be talking to us about the that subject and this would also be a great opportunity to start the interest in getting ready for the Flying Pig Marathon, and help the kids set goals to work towards, with walking or running which every you choose. If you are not familiar with the marathon, there are several different catagories, that you can enter in, and also training methods, etc. we are going to train as a family, and also work towards, the kids setting a goal as well. There is a kids run, 5 k 10K, 1/2 marathon, and the full marathon. so there is something for everyone. It is good to think ahead and look to see what your family can do. We will present more informatoin on this in September- with our Group Goals.
If you have any other ideas for events or classes you would like to know more informaiton on please let me know. I have been looking into Having FUN time in October, with a Corn maze and Pumpkin patch visit, and I have also been looking into taking a tour of a theraputic riding facility, which may be an idea for some of the families to see if this would be an alternative way for anxiety therapy, and scensory integration help. We still have several other months to fill with good ideas, and helps for informational classes. Share your ideas!!! or Resources- This isn't just about me planning and choosing everything I would like to have input from the families too or if you have a business or fun activity then let me know let's book it.
Okay, well enough said for now! See you all tonight for fun and games and ice cream.
Cari
Tuesday, August 10, 2010
August Updates and Support Group Meeting
Hello Everyone,
I hope you are having a great summer so far. We are, but I can tell that the boredom is setting in, and hopefully I can make it another month with our crew, since we have an extra long summer this year.
Our next Family support group meeting is
Family Workshop-
How to talk deal with Bullies & how to talk about your TS with others
Monday August, 23rd, 2010 at 6:30-8:00
Church of Jesus Christ of Latter-day Saints,
8250 Cornell Rd, Montgomery
The Family Workshop will be a Center/Group activity role playing how to talk or advocate for yourself, and talk about your Tourette Syndrome or your tics. Tanner will take the first 30 minutes to present the Youth Ambassador Presentation for those of you who haven't seen it, and also for the kids to see what it is like to see if they would like Tanner to come and speak to their class at the beginning of the year.
Then we will have a questions answer for the kids to Tanner about how he handles situations at school, and with his sports teams and others. Hopefully this will help the kids get some ideas of how they can approach situations.
If there is time left. We will break off into groups, and talk in small groups about different scenarios of how to handle situations. I will have slips, for the kids to draw different conflicts and how to handle them.
If you have any specific needs or issues you would like to have addressed, please email them to me and I will put them into the mix, as anonymous situations.
I hope this will give the kids a chance to think through what is coming up with the beginning of school and how to help themselves be successful.
We will have refreshments at the end- Icecream Sundaes- if you wouldn't mind RSVPing to me, if your family is planning on attending. I will have each family bring a topping for the Sundaes, and we will provide the icecream- When you RSVP I will assign you the topping to bring so we don't have to much of a good thing.
You can RSVP by replying to this email or you can text me on my cell phone- 513-569-2982
NEWS- & Upcoming ideas
TS Awareness RUN-Walk-Ride
Several families have expressed interest in doing a fundraiser by doing a run for TS or a bike for TS or something similar to that. This is a fantastic idea, and after discussing the options with The National Tourette Syndrome Association, I have found that they will actually hold an account for us to raise money for the Youth Ambassador Program even though we are not directly affiliated with the TS-Ohio chapter. So, we can take the money we raise with our runs or walks or event we decide to hold, or participate in, and send the Money to TSA National and they will put that towards helping us get the Youth Ambassador Program off and running.
If there is anyone interested in heading this up, to plan and organize this event, I would LOVE, LOVE, LOVE to talk to you. Please contact me and I can get you the information of how we can get started. I would very much appreciate the help and assistance in getting this off the ground and running. The more of us that are involved, the better, and we can have A LOT! of fun with this.
Grant Money for our Support Group-
I have recently found out about a few companies that are sponsoring kids for charitable events that they working to do. I am applying for a Grant at one of these companies, in hopes that we can get some money for our More than Tics Family Support Group. We are hoping by even qualifiying for the $300 grant that it will help us, fund some fun activities for the kids in the future. I am hoping that This money will help to supplement an Activity for October for a trip to the pumpkin patch or corn maze or some great event like that for Fall. This way we are able to help everyone come and enjoy.
If you know of any other opportunities, or Grants or money that may be available to help fund and support our Family Support Group, or the TS Youth Ambassador Program we would LOVE to hear about it. It is always worth a shot.
www.morethantics.blogspot.com We are excited to work cooperatively with TSA National, and appreciate their support and help in giving us ideas and keeping us informed of opportunities that will help us all. That is what it is all about. Helping each other be successful!!!
Happy Days!
I hope you are having a great summer so far. We are, but I can tell that the boredom is setting in, and hopefully I can make it another month with our crew, since we have an extra long summer this year.
Our next Family support group meeting is
Family Workshop-
How to talk deal with Bullies & how to talk about your TS with others
Monday August, 23rd, 2010 at 6:30-8:00
Church of Jesus Christ of Latter-day Saints,
8250 Cornell Rd, Montgomery
The Family Workshop will be a Center/Group activity role playing how to talk or advocate for yourself, and talk about your Tourette Syndrome or your tics. Tanner will take the first 30 minutes to present the Youth Ambassador Presentation for those of you who haven't seen it, and also for the kids to see what it is like to see if they would like Tanner to come and speak to their class at the beginning of the year.
Then we will have a questions answer for the kids to Tanner about how he handles situations at school, and with his sports teams and others. Hopefully this will help the kids get some ideas of how they can approach situations.
If there is time left. We will break off into groups, and talk in small groups about different scenarios of how to handle situations. I will have slips, for the kids to draw different conflicts and how to handle them.
If you have any specific needs or issues you would like to have addressed, please email them to me and I will put them into the mix, as anonymous situations.
I hope this will give the kids a chance to think through what is coming up with the beginning of school and how to help themselves be successful.
We will have refreshments at the end- Icecream Sundaes- if you wouldn't mind RSVPing to me, if your family is planning on attending. I will have each family bring a topping for the Sundaes, and we will provide the icecream- When you RSVP I will assign you the topping to bring so we don't have to much of a good thing.
You can RSVP by replying to this email or you can text me on my cell phone- 513-569-2982
NEWS- & Upcoming ideas
TS Awareness RUN-Walk-Ride
Several families have expressed interest in doing a fundraiser by doing a run for TS or a bike for TS or something similar to that. This is a fantastic idea, and after discussing the options with The National Tourette Syndrome Association, I have found that they will actually hold an account for us to raise money for the Youth Ambassador Program even though we are not directly affiliated with the TS-Ohio chapter. So, we can take the money we raise with our runs or walks or event we decide to hold, or participate in, and send the Money to TSA National and they will put that towards helping us get the Youth Ambassador Program off and running.
If there is anyone interested in heading this up, to plan and organize this event, I would LOVE, LOVE, LOVE to talk to you. Please contact me and I can get you the information of how we can get started. I would very much appreciate the help and assistance in getting this off the ground and running. The more of us that are involved, the better, and we can have A LOT! of fun with this.
Grant Money for our Support Group-
I have recently found out about a few companies that are sponsoring kids for charitable events that they working to do. I am applying for a Grant at one of these companies, in hopes that we can get some money for our More than Tics Family Support Group. We are hoping by even qualifiying for the $300 grant that it will help us, fund some fun activities for the kids in the future. I am hoping that This money will help to supplement an Activity for October for a trip to the pumpkin patch or corn maze or some great event like that for Fall. This way we are able to help everyone come and enjoy.
If you know of any other opportunities, or Grants or money that may be available to help fund and support our Family Support Group, or the TS Youth Ambassador Program we would LOVE to hear about it. It is always worth a shot.
www.morethantics.blogspot.com We are excited to work cooperatively with TSA National, and appreciate their support and help in giving us ideas and keeping us informed of opportunities that will help us all. That is what it is all about. Helping each other be successful!!!
Happy Days!
Tuesday, July 20, 2010
Youth Ambassador Program in the Local Community Press
Milford student spreads word about Tourette
This News Article was in the Milford-Miami Advertiser, July 7th 2010. Tanner gave a presentation to the Neurology Department at Cincinnati Children's Hospital in June. We were contacted by a reporter, who was excited to publish the story in the community paper showing what an excellent program the Youth Ambassador program is. Tanner really enjoyed speaking with her. He is excited to get going with his presentations in the community.
If you know of any community groups who would be interested in hearing this presentation please email us the contact information and we would be happy to contact them. We have continued to spread the information around the local school districts by emailing and mailing information to the local school districts. It is always helpful to have a personal contact.
If you weren't aware of the Tourette Syndrome Youth Ambassador Program, here is a little overview of what we do.
The Youth Ambassador Program was was started in 2002 by Jennifer Zwilling along with her mother Jane, and siblings Amanda and Eric. They developed a program which teaches teens to raise awareness about Tourette Syndrome; to advocate for themselves and for others and to educate their peers and younger children with accuate information by going into classrooms, schools and clubs to teach understanding, sensitivity and tolerance of TS and its symptoms while displacing the myths and steriotypes that are often attributed to and associated with this misunderstood and misdoagnosed disorder.
Gives a 30-45 minute presentation which can be adapted to many different group types. He shares his personal experiences, and also provides a very interactive way of understanding what it is like to have Tourette Syndrome and OCD.
Tanner is the Tourette Syndrome Associate Youth Ambassador for the state of Ohio, and Northern Kentucky. If you are interested in scheduling a presentation please contact Cari Hutchison at morethantics@gmail.com or by calling 513-569-2982.
This News Article was in the Milford-Miami Advertiser, July 7th 2010. Tanner gave a presentation to the Neurology Department at Cincinnati Children's Hospital in June. We were contacted by a reporter, who was excited to publish the story in the community paper showing what an excellent program the Youth Ambassador program is. Tanner really enjoyed speaking with her. He is excited to get going with his presentations in the community.
If you know of any community groups who would be interested in hearing this presentation please email us the contact information and we would be happy to contact them. We have continued to spread the information around the local school districts by emailing and mailing information to the local school districts. It is always helpful to have a personal contact.
If you weren't aware of the Tourette Syndrome Youth Ambassador Program, here is a little overview of what we do.
The Youth Ambassador Program was was started in 2002 by Jennifer Zwilling along with her mother Jane, and siblings Amanda and Eric. They developed a program which teaches teens to raise awareness about Tourette Syndrome; to advocate for themselves and for others and to educate their peers and younger children with accuate information by going into classrooms, schools and clubs to teach understanding, sensitivity and tolerance of TS and its symptoms while displacing the myths and steriotypes that are often attributed to and associated with this misunderstood and misdoagnosed disorder.
Gives a 30-45 minute presentation which can be adapted to many different group types. He shares his personal experiences, and also provides a very interactive way of understanding what it is like to have Tourette Syndrome and OCD.
Tanner is the Tourette Syndrome Associate Youth Ambassador for the state of Ohio, and Northern Kentucky. If you are interested in scheduling a presentation please contact Cari Hutchison at morethantics@gmail.com or by calling 513-569-2982.
TSA 2010 National Conference Videos Online
I received this email this morning from TSA National office, letting us know the Conference videos are online. I am so excited to watch these again. I was able to attend the conference this year, and learned so much from the classes, some of which these videos were made from. There is a lot of great information to be gathered from them. I would definately encourage anyone to take a bit of time on your breaks, or at night when the kids are asleep, (my favorite time of the day) to take a look at these videos. It is a great opportunity to learn more and help our families.
Tourette Syndrome Association 2010
National Conference Videos Now Online!
Three informative video sessions, developed to help children, teens, young adults and families, filmed at the April 2010 Tourette Syndrome Association (TSA) National Conference, are now available for viewing at on the TSA Website here.
BULLYING PREVENTION features a presentation by Julie Hertzog, Bullying Prevention Project Director at PACER, and Sandra Hollis, Chair TSA Education Committee. This video will bring you up to date on the proactive ideas that kids, parents, teachers and schools are using to protect and value everyone in the school. The approaches discussed will be of interest to families and educators across the country.
Cathy Budman M.D. and Michael Himle Ph. D. offer a joint program covering two important areas: Dr. Budman presents on IMPULSE CONTROL & DYSREGULATED AFFECT SYMPTOMS IN TOURETTE SYNDROME. This authoritative session reviews a range of factors reflected in behavioral issues and impulsivity. In TREATMENT OF IMPULSIVE AGGRESSION IN TS: A COLLABORATIVE APPROACH Dr. Himle presents families with background on and discussion of effective techniques you can use for addressing these often-difficult behaviors.
In ORGANIZATION & EXECUTIVE FUNCTION, Sarah Crowther, Director of Student Success, Culver-Stockton College, presents to the Conference's teen and young adult track, all of whom nod their heads in recognition and agreement...as she discusses these challenges and helps the group learn to deal with them.
TSA's April 2010 National Conference offered an array of incredible presentations, innumerable chances for attendees to hear from leading authorities, and to meet and exchange experiences with dozens of families from across the country and around the world! TSA is happy to share these selected videos from that unforgettable gathering. We hope that families, individuals, teens, young adults, educators, and providers will find valuable information in these programs.
The information provided in this material was supported by Grant/Cooperative Agreement Number DD000343 from the U. S. Centers for Disease Control and Prevention (CDC).
The contents are solely the responsibility of the authors and do not necessarily represent the official views of CDC or TSA
Tourette Syndrome Association 2010
National Conference Videos Now Online!
Three informative video sessions, developed to help children, teens, young adults and families, filmed at the April 2010 Tourette Syndrome Association (TSA) National Conference, are now available for viewing at on the TSA Website here.
BULLYING PREVENTION features a presentation by Julie Hertzog, Bullying Prevention Project Director at PACER, and Sandra Hollis, Chair TSA Education Committee. This video will bring you up to date on the proactive ideas that kids, parents, teachers and schools are using to protect and value everyone in the school. The approaches discussed will be of interest to families and educators across the country.
Cathy Budman M.D. and Michael Himle Ph. D. offer a joint program covering two important areas: Dr. Budman presents on IMPULSE CONTROL & DYSREGULATED AFFECT SYMPTOMS IN TOURETTE SYNDROME. This authoritative session reviews a range of factors reflected in behavioral issues and impulsivity. In TREATMENT OF IMPULSIVE AGGRESSION IN TS: A COLLABORATIVE APPROACH Dr. Himle presents families with background on and discussion of effective techniques you can use for addressing these often-difficult behaviors.
In ORGANIZATION & EXECUTIVE FUNCTION, Sarah Crowther, Director of Student Success, Culver-Stockton College, presents to the Conference's teen and young adult track, all of whom nod their heads in recognition and agreement...as she discusses these challenges and helps the group learn to deal with them.
TSA's April 2010 National Conference offered an array of incredible presentations, innumerable chances for attendees to hear from leading authorities, and to meet and exchange experiences with dozens of families from across the country and around the world! TSA is happy to share these selected videos from that unforgettable gathering. We hope that families, individuals, teens, young adults, educators, and providers will find valuable information in these programs.
The information provided in this material was supported by Grant/Cooperative Agreement Number DD000343 from the U. S. Centers for Disease Control and Prevention (CDC).
The contents are solely the responsibility of the authors and do not necessarily represent the official views of CDC or TSA
Thursday, July 8, 2010
NAMI National Alliance on Mental Illness August Meeting
Here is an opportunity through NAMI- National Alliance on Mental Illness. They have monthly meetings, with guest speakers. Although it isn't directly related to Tourette Syndrome, it is helpful information on the Comorbid disorders that come with TS. Aaron and I have attended their Family to Family classes and learned a great deal about the other disorders, and mental illnesses. It really opened our eyes and our hearts to other families and disorders.
Union Township Civic Center
Queen City Room A
4350 Aicholtz Road
Cincinnati, OH45255
6:30 PM "Caring and Sharing" support group at 6:30 PM
info@nami-cc.org
http://www.namiccorg/
Here is the contact information if you would like more information on their services available.
7:30 PM Guest Speaker: Robert Kuykendal, M.D.
Topic: Ask the Doctor
Here's your chance to get some questions answered by a man with lots of experience! We're happy to welcome Dr. Kuykendal, who has too many awards and distinctions to list. Two that we will mention are the NAMI Hamilton County Exemplary Psychiatrist Award and the Hamilton County Community Mental Health Board Leadership in Psychiatry Award.
Union Township Civic Center
Queen City Room A
4350 Aicholtz Road
Cincinnati, OH45255
6:30 PM "Caring and Sharing" support group at 6:30 PM
info@nami-cc.org
http://www.namiccorg/
Here is the contact information if you would like more information on their services available.
7:30 PM Guest Speaker: Robert Kuykendal, M.D.
Topic: Ask the Doctor
Here's your chance to get some questions answered by a man with lots of experience! We're happy to welcome Dr. Kuykendal, who has too many awards and distinctions to list. Two that we will mention are the NAMI Hamilton County Exemplary Psychiatrist Award and the Hamilton County Community Mental Health Board Leadership in Psychiatry Award.
Wednesday, June 16, 2010
The End of Childhood Best Friends
This is an interesting article I found in Newsweek about childhood friendships. I thought it said a lot from what we all may remember about having buddies growing up and what we are always trying to do in helping our kids find good friendships.
http://www.msnbc.msn.com/id/37743610/ns/health-kids_and_parenting//
http://www.msnbc.msn.com/id/37743610/ns/health-kids_and_parenting//
Upcoming Events June-October
July- No meeting- Enjoy the break!
August-16th- 6:30-8:00 at the Church- Preparing your child to go back to school- Role playing social situations- How to talk about your TS to others, and how to deal with questions and teasing. This class will be focused on the kids, and working with the kids, on how to manage social situations. IceCream Sundaes for Refreshments- build your own- Sign up to bring Toppings- (sign up will be emailed out with an invitation)
September 20th- 6:30-8:00- at the Church- Importance of Health and Nutrition and Excercise- Laurie Dunham- Licensed Dietician, and mother of TS child- Will be talking about the important role Nutrition and excercise play in managing our children's care, and symptoms.
October- date to be announced- Pumpkin Patch Adventure- Family trip to a local pumpkin patch, we are still finalizing the details of the Location.
August-16th- 6:30-8:00 at the Church- Preparing your child to go back to school- Role playing social situations- How to talk about your TS to others, and how to deal with questions and teasing. This class will be focused on the kids, and working with the kids, on how to manage social situations. IceCream Sundaes for Refreshments- build your own- Sign up to bring Toppings- (sign up will be emailed out with an invitation)
September 20th- 6:30-8:00- at the Church- Importance of Health and Nutrition and Excercise- Laurie Dunham- Licensed Dietician, and mother of TS child- Will be talking about the important role Nutrition and excercise play in managing our children's care, and symptoms.
October- date to be announced- Pumpkin Patch Adventure- Family trip to a local pumpkin patch, we are still finalizing the details of the Location.
Wednesday, June 2, 2010
June Support Group Meeting & Lindner Center Summer Smart program
We had a wonderful turnout for our Bonfire and BBQ- It was a lot of fun to hang out and get to know you all better. Thank you so much to all of you who traveled so far to come and participate. We look forward to finding more activities to do in other areas around Cincinnati. If you have any suggestions, please post a comment and let us know. It is our hope to get other groups started and running all around the Tri-state area.
Also be sure to sign up on our email list at morethantics@gmail.com (This is a private list, and I definately do not use the information except for Tourette Sydrome related business.)
Here is the information for June's Family Support Group Meeting-
Monday June 21st- 6:30-8:30
Jennifer Wells LSCW,
Lindner Center of Hope
Speaking on OCD Anxiety and it's ties to Tourette's Syndrome
The Church of Jesus Christ of Latterday Saints
8250 Cornell Rd
Cincinnati Ohio 45249
We are going to be posting more information on the Tourette Syndrome Youth Ambassador Program. We are scheduling events to speak at and Tanner will be heading to Cincinnati Children's Hospital Next week to speak to the Neurology nurses. We are always looking for more Youth ambassadors, so if you are interested then please let us know, and we would love to speak with you.
Also be sure to sign up on our email list at morethantics@gmail.com (This is a private list, and I definately do not use the information except for Tourette Sydrome related business.)
Here is the information for June's Family Support Group Meeting-
Monday June 21st- 6:30-8:30
Jennifer Wells LSCW,
Lindner Center of Hope
Speaking on OCD Anxiety and it's ties to Tourette's Syndrome
The Church of Jesus Christ of Latterday Saints
8250 Cornell Rd
Cincinnati Ohio 45249
We are going to be posting more information on the Tourette Syndrome Youth Ambassador Program. We are scheduling events to speak at and Tanner will be heading to Cincinnati Children's Hospital Next week to speak to the Neurology nurses. We are always looking for more Youth ambassadors, so if you are interested then please let us know, and we would love to speak with you.
Thursday, May 27, 2010
Tri-State Family Support Group
One thing my husband and I have heard over and over, is the need for families who deal with Tourette Syndrome to have a support group. We have spoken with so many of you, and Therapists and doctors as we have sought treatment for our own children, we decided to start our own support group. We tried to start with TSA of Ohio, but I think our forward thinking and ideas were a little far fetched for what they were concentrating on right now. So we are breaking out on our own, since we have a place to meet and many families that have been contacting us, it is good to just keep the momentum moving forward and including all of you in that.
One of the main focus' that we want to have, is on the Family. We feel it is VERY important for other TS kids to have other TS kids to hang out with and know they understand what each other is dealing with. It is also important to have that support as parents, from other parents who have been down the road you may be on, or have experienced something you are starting. HERE IT IS, THE FAMILY SUPPORT GROUP!!! We want the kids to attend, and we will be providing activities for them to enjoy with each other while you are learning from speakers, or doing other activities. There will be adult supervision at all times. You are welcome to help out any time, and check in on your children at any time. Siblings need to be apart of it too so they are welcome to join us all as well.
Our first meeting is this weekend,
Family BBQ-Bonfire-Barrel Burning of old school papers
May 27, 2010 6-10
Hutchison Home
The purpose of this event is just socializing. We have a tradition in our family of burning all our old school papers in our barrel as our last hurrah! Bring you papers to burn, with parent approval of course. (It cleans out the collections from savers as well)
We will be providing Hotdogs, Hamburgers, and Smores. Bring a potluck side dish to share.
Monday June 21st- 6:30-8:30
Jennifer Wells LSCW,
Lindner Center of Hope
Speaking on OCD Anxiety and it's ties to Tourette's Syndrome
The Church of Jesus Christ of Latterday Saints
8250 Cornell Rd
Cincinnati Ohio 45269
Keep checking back as we start updating this blog, and making things happen.
One of the main focus' that we want to have, is on the Family. We feel it is VERY important for other TS kids to have other TS kids to hang out with and know they understand what each other is dealing with. It is also important to have that support as parents, from other parents who have been down the road you may be on, or have experienced something you are starting. HERE IT IS, THE FAMILY SUPPORT GROUP!!! We want the kids to attend, and we will be providing activities for them to enjoy with each other while you are learning from speakers, or doing other activities. There will be adult supervision at all times. You are welcome to help out any time, and check in on your children at any time. Siblings need to be apart of it too so they are welcome to join us all as well.
Our first meeting is this weekend,
Family BBQ-Bonfire-Barrel Burning of old school papers
May 27, 2010 6-10
Hutchison Home
The purpose of this event is just socializing. We have a tradition in our family of burning all our old school papers in our barrel as our last hurrah! Bring you papers to burn, with parent approval of course. (It cleans out the collections from savers as well)
We will be providing Hotdogs, Hamburgers, and Smores. Bring a potluck side dish to share.
Monday June 21st- 6:30-8:30
Jennifer Wells LSCW,
Lindner Center of Hope
Speaking on OCD Anxiety and it's ties to Tourette's Syndrome
The Church of Jesus Christ of Latterday Saints
8250 Cornell Rd
Cincinnati Ohio 45269
Keep checking back as we start updating this blog, and making things happen.
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